Let's Clarify a Few Things

In reading one of my favorite blogs this morning, there was a post on how brain death isn't "death", and thus, how organ donation is basically people killing other people for parts.  The blog post linked to an "article" (which is really a charitable term for what it was), where the comment box was full of uneducated, conspiracy-theorist things about organ donation and how it's all a government plot to help SKYNET! Oh, and only rich people get organs because they bribe doctors. 

Also, transplants are "glamorous."

Yes. They so are. Let me tell you how glamorous it is to be cut in half and not able to take a real bath for a month. Let me tell you how glamorous it was for me to almost lose my right arm due to IV infiltrate. Let me tell you how glamorous it is to walk up and down hallways and have X-rays at 6 AM and to be in so much pain that just sitting up is difficult. Yes, that sounds super glamorous!

And it was so glamorous for my doctors and nurses and the rest of the staff, too. Because nothing says glamor like a twelve-hour surgery for my surgeon, where he's doing NOTHING but surgery. And it's also super glamorous to stay at a hospital for days on end making sure your patient doesn't die, and not be able to go home until you're certain she's stable. That is also super glamorous. 

And of course my family and I are just loaded. We live in Downton Abbey, didn't you know that? We have a private jet and everything. My parents don't have two other kids, or bills, or a mortgage. Nah. We're just dripping in extra money that we can use to bribe hospitals in two states to kill people so I can grab their organs. Yup. That's how it goes over here. 

(If you're sarcasm-impaired: the above is all sarcasm.)

Can we be real, please? If it really worked the way these people thought it worked, then 21 people wouldn't die every day waiting for organs that don't come. 130,000+ people wouldn't be on the transplant waiting list. Every hospital would do them, instead of only the relative handful that do. And everyone who needed one would get one, regardless of whether or not they're a good transplant candidate. 

Money, power, position....none of those things have anything to do with organ donation. Sorry. I hate to burst the conspiracy theorist's bubble. 

And also--guys. Brain death isn't some magical thing that we cooked up as part of a big racket. Again, see stats above. People aren't prowling hospitals looking for people to kill off for their organs. If that happened, people would lose their jobs. Centers would shut down. There would be an enormous public outcry and no one, understandably, would be an organ donor! 

All major religions support organ donation. St. Pope John Paul II and Pope Emeritus Benedict XVI supported/support organ donation. The Catechism of the Catholic Church says it's "Meritorious." 

You want to see how glamorous it is? How awful the surgeons and hospitals are? OK. Here you go. 

Organ Donation and Catholicism

Just a quick blurb here, guys: 

Some people have it in their minds that the Catholic Church does not support organ donation. It does. 

Just to clarify: the church supports organ donation. Pope Emeritus Benedict XVI was/is an organ donor (I'm not sure if he still is, but age doesn't matter for organ donors--as long as the organs are good, they're good!). 

The people who think this seem to be from a super-traditional sect of the church, and they think that only living organ ovations are OK. That's not what the church says, and that's not how most organ donations occur. You can't give someone part of a heart. My organ donor had to give me both lungs--and obviously, she had to be dead for that to happen! (This isn't true for all lung transplant, by the way--some are possible with living donors. They're called living lobar transplants, but that's another kettle of fish.) 

As long as the donor has expressed the desire to donate organs (as in, be a registered organ donor, people!), or the family OKs it, organ donation is perfectly kosher. You cannot kill people for their organs, and that's not what happens in the United States or European countries. Some countries, yes, this happens, and that's not ethical. But that doesn't happen here. Doctors take care of you and give you the best care, whether or not you're an organ donor.

All major religions support organ donation as a selfless and charitable act of love for another person. 

So if you ever hear someone say the church doesn't support organ donation, whoever is saying that is incorrect. 

Starting the Ten Year Party

So far, the "official" markings of my 10 year transplant anniversary have been good. My tests all came back beautifully from clinic, so that's excellent news. We test not just the lungs, but all my vitamin levels, kidney function, bone density, and things like that, to make sure that the meds aren't causing problems in other areas of my body, and I'm glad to report that they are not. So that's fantastic. Yesterday, I went to Lifeline of Ohio's monthly staff meeting to talk briefly about my transplant experience. Lifeline of Ohio is my local organ procurement agency, and they're the people that do the "grunt" work, so to speak, of organ donation, for my area of Ohio. They promote and coordinate the donation of organs, and I've done a lot of volunteering with them since my transplant. Normally, I connect with the communications and education people, who organize talks and volunteer opportunities, but the meeting was for everyone who works for lifeline--about 60+ people, and includes nurses and medical staff and a host of people in other areas.

I didn't talk long--about five minutes or so--but it was great to share my story with them. They have a new person come in every month to talk about their experience and I think that's a great idea. It shows the staff the results of all their hard work! There were a few questions after:

Do I still have CF? Yes, I do. I'm very fortunate in that I don't have a lot of other CF problems. I don't have diabetes, my kidneys behave, and my sinuses are good. I am pancreatically sufficient, so I don't take enzymes and I'm not malnourished (hahaha, malnourished. Ha. Right. So far from that now.) Other people aren't quite that lucky, but for me, my CF problems were mostly confined to my lungs. But since CF is a genetic disease, I still have it--the transplant didn't change my genetic code. But my version (so to speak) of CF was helped enormously by the transplant.

How long was the wait and what was it like? The wait was about 40 days, give or take. It was hard to do everyday things like brush my teeth. Think about that. Brushing your teeth isn't exactly hard. But I couldn't do it and breathe at the same time. After, of course, totally different story.

I also talked about the advantage of having a center so close to me. In central Ohio, we're blessed to have two lung transplant centers within a few miles of each other! If I'd had gone to Cleveland, Pittsburgh, or St. Louis (the other centers that my CF team sent people for transplant), my mom and I would've had to relocate, for months, leaving my dad and my two siblings (who were both still in school at the time) to fend for themselves. It wouldn't have been pretty. It was so much easier to be twelve miles away from the center and to be able to go home right after my discharge, and not stay in an apartment or Ronald McDonald house sort of thing for months on end.

The anniversary, officially, is in about two weeks. We'll be in Charleston the day of, and I'm so excited for that!

If you're not an organ donor, please be one? Please please? You can find information and sign up here.