So you can pick up the book there too!
-3-
OK so, living like me.
One of the things I’ve said in this crazy virus time is that immunosuppressed people like moi actually know how to protect themselves from viruses and things, because we do it all the time.
So now, I shall share my tips with you!
Let’s talk about crowds in general. About people. The first year after my transplant, my team was strict about certain things—no malls in the winter, things like that. I couldn’t go to Mass for the first three or four months post-transplant. Since I’m not almost 15 years out, a lot of those restrictions have eased.
I still don’t really like to fly during flu season and avoid it if possible. But I go to the movies and the mall and all sorts of places. I take precautions. Things like eating from a salad bar, I still don’t do. I try to avoid buffets as much as possible, or, if possible, I try to serve myself first so that I avoid most of the people’s germs getting on the food. These are things I and my family think about. You might not have to think about it, but if you’re worried about the virus, it might behoove you to start thinking about these things and deciding what you are comfortable with—as in, your personal level of risk.
I know people, for example, who, post-transplant, change their clothes if they' are in the hospital for any period of time. I never did that. First off, it would’ve been insanely impractical; I often went from clinic appointments to work. But also, because I was comfortable with that level of “exposure” or “risk.”
So, deciding on your personal risk level is important. And realize that not everyone shares your feelings—and I don’t expect everyone else to live like me! :) But if you want to know my tips, here we go.
-4-
Carry hand sanitizer. Get one of those little key chain things from Bath and Body Works and put hand sanitizer in it. Grab sanitizer whenever you’re in there to stock up on body wash or whatever—it’s almost always on some sort of sale. Then you have a stockpile! I keep one in my desk and also in my purse.
NOW: Here is how you use it.
When you touch things, you use the sanitizer. Touch money? Sanitizer. Use the pen at the credit card kiosk thing at the store? Sanitize. Use the gas pump? Sanitize. Just do it. It becomes a habit. In the hospital rooms at the resort there is a sign that says GEL IN, GEL OUT. That means use the sanitizer gel when you come into a patient’s room, and when you leave it. So think of that. Gel in. Gel out. Clean hands! (You don’t have to use it EVERY TIME YOU TOUCH SOMETHING. You’d go nuts. But use it at various times when you’re in a store. Definitely use it when you leave. Things like that.)
-5-
BRING YOUR OWN WHATEVER
Carry your own pens in your purse, so they’re “clean”, and no one else uses it but you! If you use the pen at the doctor’s office, sanitize your hands after you use it! (Also clean off your cell phone, don’t let other people touch it, and if they do, clean it again. Normally I’m not fanatical about this, but right now, it can’t hurt!)
I have my own Magnificat for a few reasons—because I wanted all the prayers to help me know what the priest is saying at Mass, but now, it’s so I don’t use the communal pew missal! It’s clean! It’s mine! No one else messes with it! Only germs on it are mine. :)
Have tissues in your purse, so that if you have to blow your nose, you can and there you go. :) (Also useful for spitting when you have productive cough—isn’t CF elegant? :-P)
When I fly, I bring wipes, and I wipe down the tray, the seat back, the seat rests, and anything else I’m likely to touch. I am really germaphobic when I fly. Now, who knows, I might be that way at a restaurant.
-6-
Don’t open doors with your hands. Use the handicapped switch plate, if there is one—just bang it with your elbow. Push against doors to open them. Also, if you’re wearing gloves (like regular winter gloves), you’re OK. Basically you want to avoid “high touch surfaces”—if you can’t, then, sanitize and go.
In the bathroom you can try to use a paper towel to open the door after you wash your hands, or just sanitize when you get back to your seat. (B/c not every place has paper towels, but they need to bring them back, since they’re MUCH more effective at removing germs from hands after you wash them than the “air dryer” thing.)
-7-
Demonstrate good germ hygiene. Cough into your elbow. Blow your nose once and toss the tissue. IF YOU ARE SICK STAY HOME PLEASE. This, really, is key. I can do all sorts of things to protect myself, but if you come to church/work/whatever, sick, you are putting people at risk. Please do not be stupid. If you MUST come to work sick, then do whatever you can to avoid infecting others. Don’t sit at he communal lunch table! Cover your cough! Etc.
I am not perfect about all this—ask my mom! :) But I’m still alive 15 years post-transplant so I must be doing something right.
Did I wear masks out and about before? No. Not unless I was on a plane or in a hospital (and even in a hospital under SEVERE duress. I hate wearing them). I do have them—as in, real surgical masks. (I also have cloth ones, thanks to my friend Elizabeth!) I will be wearing them when I go out and I’ll keep a stash in my purse, just like I do with tissues and hand sanitizer.
The whole point of a transplant is to have a life after transplant. I know people who are SERIOUS germaphobes post. They don’t open their windows when someone is cutting grass outside. They don’t open car windows if there’s construction. They’re terrified of leaving their house.
That was never me. The point is to live, but not live stupidly. I try not to do stupid things.
Like I said above, I’m not perfect. But a lot of people are freaking out about being in public with anyone, with touching anything, and I’m going to tell you that there are ways to do it and be safe. There really are. I know because I do it, every day, year in and year out, that don’t involve shutting everything down and never leaving your hobbit hole again. I went to the pool. I went to hockey games. I went to amusement parks.
In short, I had a life.
You can too!
