Emily M. DeArdo

author

Jeopardy,travel

Daybook No. 106--the day the manuscript is mailed!

behind the scenes, current projects, Daybook, writing, books, memoir, travel, Tidying UpEmily DeArdo1 Comment

Outside my window::

(Well, it's really Starbucks' window. It's 9:30 AM as I'm writing this and I'm being very sterotypically "writerly" by doing this at a Starbucks.)

Cloudy and windy. Only going to be in the 50s today. Well, hi, Fall.....

Wearing::

Jeans, pink flats with flowers on them, a long-sleeved gray t-shirt, fake diamond studs. (Big ones. Ha!)

Listening to::

Outlander Vol. 2 is in the CD player, but in here it's low talking and coffee machines humming and frothing. This Tanzania reserve I'm drinking is pretty awesome, btw. 

Writing::

Guys. Today the book is getting ailed to a  publisher

Yeah. Squeal a little with me. :) 

No, they haven't already accepted it. This is my submission. It will take about three months to hear back. But it's getting mailed to a real, live publishing house. I can't even, people. 

(Actually, by the time you read this, it might already be out and on its merry way!)

How can you help me get this published? , you may be asking. 

Well, I'll tell you!

First, if you already subscribe to this site, five thousand thank you. That's a huge help. If you could follow me on other social media (the buttons are over on the right sidebar), that would also be enormously helpful. Social media follows are a huge part of my "platform", as it were, and very helpful because it indicates people who might actually, you know, read this thing when it comes out--and buy it! Not just read it. Spend money on it.  

If you do not subscribe to the site, and you followed this link from somewhere else--please subscribe? I promise I won't do anything untoward with your information, and you won't get five thousand emails from me. You'll just get notices when blog posts go up, and maybe, occasionally, newsy things. (I haven't done that yet. But I could.)

Second, send prayers/good thoughts out about it. If you pray, please pray for its success! If you don't, then just send happy thoughts out into the universe, please? 

If this publishing house doesn't take the manuscript, then there are many other places I can try. This is by no means the only place. It's just the first place. 

And thank you to everyone who supports my writing on a daily basis. I am thankful for you! (That means you, readers.) 

Also: My Second September Real Housekeeping Piece is up now! 

Reading::

The books I have packed for Boston are all about creativity and writing. Noticing a theme? Right now, though, I'm reading The Book of SHEFinding God's Will For You, and The Throne of Fire. I've also got arly Warning in my pile, but it is so not speaking to me....but I don't want to give up on it, yet. I'm also reading Elena Ferrante's Neapolitan series. I finished My Brilliant Friend, which I really liked, so I'm on to book two, The Story of a New Name. There are four books, total, in the series, and the last one was just published. Thanks to Richelle for letting me know about these! 

 

Thinking Ahead::

After Boston, I have our Third Order Retreat the following weekend, and then  blessed weekend at home. :) The weekend after that, I have a wedding of a good friend in Indiana. Then another weekend off, then I'm going to Pittsburgh to be my cousin's confirmation sponsor. So I'm thinking about ways to enjoy all of the awesome that's coming, but also stay sane with the things that have to be done--health, fitness,keeping the house clean, eating well, all those things. So it's going to be a balancing act, but I think a useful one. I'll have to use my weekdays to recharge and focus on the "here" things. 

In other news, my Boston bag is almost packed, and I think I've decided what to wear for the audition!

Tidying Up::

So the clothes are done, done, done! The last bag of donated items went out the door today. The books are a work in progress. I keep weeding out, a bit at a time, but so far 11 bags of books, CDs and DVDs have gone to Half Price books, and a few have been donates. 

The third step is paper, and I've got the paper on the first floor corralled and dealt with. Yay! Now the goal is to hit the office, where paper just lives. It's the Paper Capital of my house. So that's on tomorrow's agenda, I think. 

After the paper, that's when Marie K. suggests hitting the DVDs and CDs, but I've already done those, since they go with the books in the "to be sold" pile. I weeded out a lot of CDs, which made me happy, so now it's down to CDs that I actually listen to. What an idea, right? 

Looking Ahead::

I leave for Boston on Saturday, and I come back on Monday. So Friday is the mania that is finishing packing and making sure all the logistics are in place. It might rain, now, when we're in Boston, so I have to come up with a Rain Sight Seeing Plan. This might involve....museums. I don't think Dad likes museums. But I do? We'll figure something out. The Freedom Trail does have some inside sights, and we can always hang out in the North End and drink coffee with our Italian brethren all day. Nothing wrong with that!

 

 

 

Daybook No. 105

Daybook, books, fiction, Real Housekeeping, writing, Catholicism, current events, travelEmily DeArdoComment

Outside my window::

Partly cloudy and warm. I'm ready for fall.....I've got a candle burning to helpfully spur my "fall feelings" inside. :) I am, however, wearing jeans! 

Reading::

Early Warning, Middlemarch, The Mark of Athena, A Year of Pleasures

In the CD player::

Sarah McLachlan's Shine On

Remembering::

A dear colleague/friend of mine, Cheri Mitchell. She was the former director of BalletMet, who had just retired, and I met her during my work with the Young Professionals board. She was so dedicated to her work and the arts in Columbus, but she was also incredibly supportive in my own writing and theatrical endeavors, often leaving kind notes or comments on my Facebook page whenever I wrote about theater project or writing updates. I will miss her. 

She was hit by a car when she was out running this morning. It's so crazy to think that she woke up this morning and was fine....and now she's gone. 

I will be keeping her soul and her family in my prayers. Can I ask y'all to do the same thing? 

However, Cheri would've been pleased with this next bit....

Writing::
The book, as we know, is done. And it will be mailed out tomorrow! I have to scribble out a cover letter tonight, but soon it will be on its way to San Francisco....and then I wait!

My newest Real Housekeeping piece is up, as well! It's a little different but I think you'll like it.

And I also think I've solved the problem of my 2014 NaNoWriMo novel. Basically, I started writing this novel, and it just didn't want to write--I was missing something. But I think, with some thinking on it, I have a new idea an possibly a new format for it (multiple narrators). Now that THE BOOK is done, I have time to go back to some of my fiction projects that are in various stages of completion. 

Health::

I had a clinic appointment yesterday, and everything is stable, so that's good, and I got my flu shot. Oh joy! I had a dentist appointment today, and I've got my first cavity in like, 20 years, so I guess that's something....going back to have that fixed after the Boston trip. It's super tiny so it's not a huge deal but I was sad to break the streak of Awesome Teeth. :-P 

Pondering::

The Pope's visit and the Synod on the Family. Both of these things sort of give me the heebie jeebies. I miss John Paul and Benedict. I know we've had "average" popes before, but the majority of my life was spent under two amazing popes, one of whom is a saint. 

Pope Francis makes my head hurt. When I read Laudatio Si', I spent a lot of time going "what? What does that mean?" I know he's Argentinian, so he's coming to things from that perspective. I know he's South American. I know he doesn't speak English. But I just can't get a good read on him, or really understand what's important to him. He just seems so all over the place. I don't really like it when the pope is all over the place. 

I'm listening to Fr. Robert Barron talk at the World Meeting of Families right now, which is the precursor to the Synod, I think. The Synod also makes me nervous. I don't like changing things to be "modern" or "hip." I like things that are true. I'm a Dominican. I don't like to see things change that are contravene truth and what we believe. I'm hoping that doesn't happen. I'm also hoping the pope doesn't say something inexplicably crazy in front of the UN or Congress. 

Maybe I'm worrying too much, and maybe I just need to "let go and let God." But I still worry. And it's not that I feel "challenged" by him--it's that a lot of the stuff he says is so dang confusing!

Around the house::

Took five more bags to Half Price books today--CDs and books, mostly. Yes, I skipped ahead a bit and did my CDs today. The CDs are supposed to be done after paper. I did the downstairs paper, which is stuff like my lease, tax returns, etc. and tossed the stuff I didn't need anymore, and managed to combine what I do need into one vertical file. There are also the papers in the office, which will probably just be summarily trashed, because it's stuff that Kondo calls "seminar notes"--things I printed out, meaning to read them.....and then never did. Out they'll go. 

From the kitchen: 

I loved Jamie Oliver's chicken fajitas so much when I made them a few weeks ago that I'm making them again. I serve them with his really easy homemade salsa and some cheddar cheese, and no tortilla, to reduce the carb load. And let me tell you, it's amazing. I think next week we're going to have another Food Stories post up about Mexican Food. I'm also thinking about making my first kedgeree this week, which excites me greatly, because it's fish and cheese and other awesome things. :) 

Planning for Boston::

We've made two reservations--one at La Summa, in Boston's North End, and one at Legal Seafood by the New England Aquarium. The Jeopardy test is at 9:00 on Sunday morning, and let me tell you, I'm going to be HUNGRY after that test, so we'll be heading to the Faneuil Hall area of downtown first, so we can eat!

Daybook No. 104: A pleasant surprise!

Daybook, travel, booksEmily DeArdo1 Comment

Outside my window::

Sunny and blue skies; definitely a nice thing to wake up to.

Wearing::

I'm going to the gym shortly, so Athleta relay capris in a  bright orange red, and one of Athleta's tops--a gray t-shirt. 

In the CD player::

Audrey Assad's Fortunate Fall

Reading:: 

MiddlemarchA Right to be Merry (about cloistered Poor Clares), and I'm picking up the latest Michael Vey installment today, because I love Richard Paul Evans. I've also got A Spool of Blue Thread in my Library Book Pile. 

Kondo update: 

(I call it "Kondo" update, because the book I'm using, The Life-Changing Magic of Tidying Up, was written by Marie Kondo. You can read about it here, if you're new to the whole thing.) 

So, the clothes are gone. Well, I mean I'm done with sorting my clothes. Ten bags, including one full of shoes. For my old job, I needed lots of "work clothes", including heels, pants, etc.--things I hate to wear in general. Well now, they are off to be used by someone else! 

The second group of items Marie has you work on are books. As one of my friends said, "You are getting rid of books?!" Yes, I am. I generally do this fairly regularly, but this is a big purge. I'm getting rid of all the books I don't love. That means there's probably about 75 books in several small piles in my main room. There are more books to be sorted in the book room, but I'm already thinking there will be four or five bags (Not trash bags, but like tote bags) of books taken to Half Price Books. That doesn't count the DVDs and CDs that are going to be sorted later, and that I'll also take there. 

So this week, I'll be finishing the books, and maybe moving on to the papers (her third category). 

The big surprise!::

Yes, I sort of hid it down here. I'm crafty like that!

So in 2013, I was invited to the second round of Jeopardy! auditions.  Basically--and you can read more about it at the link--the way it works is you take the test, and then you can't take the online test (the first part of getting on the show) for about two years. 

In January, I could take the test again, and so I did. I didn't think I did that well, and I promptly forgot about it. So I was pretty surprised when I found an email in my inbox Friday night saying that I'd been invited to the second round of auditions in Boston!

The audition is October 4 at 9:00 A.M. It takes about two hours. So dad and I will be spending a few days in Boston! I've never been to Massachusetts, so it'll be my second new state this year, and Boston will feed a lot of my history geek urges. I wish we could get to Concord to se Orchard House, but that's not going to happen. Oh well!

October is just crazy. There's Jeopardy!, then my Third Order retreat, then  a friend who's getting married in Indiana. So at least I'll be really good at packing, if I'm not already, by the end of that month! 

Health/Fitness::

Last week I had two really great workouts back to back, and that excited me. It also re-ignited my desire to reach new milestones in what my body can do. I might not ever like working out, but I do love the way I feel after a great workout. So today I'm hitting the gym (the last two were outside workouts, because the weather was perfect--upper 60s/low 70s. When it's in the 80s, like it will be today, working out outside isn't such a great thing for me.). I've also been paying more attention to strength training.  I have a doctor's appointment on Monday, so, yes, that's also part of the motivation. 

From the kitchen::

More Jamie Oliver recipes this week. I've got a steak today, and then a chicken recipe where the chicken is wrapped in proscuitto. YUM, right? 

 

 

Seven Quick Takes No. 80 : The Charleston Travel Edition

travelEmily DeArdo3 Comments

It's Friday, so that means Seven Quick Takes! @emily_m_deardo

I.

So I've obviously talked a lot about Edel this week, but not so much about the city we were in, and what I did when I wasn't bonding over crazy shoes and cocktails.

The Edel cocktail: Sweet tea vodka, lemonade, and mint.

(Yes, I had my quasi-yearly cocktail at Edel. )

So let's walk through this lovely city, shall we?

(Although walking when it's over 100 degrees with the humidity....yeah. Not so much for this Midwestern girl.)

II.

We stayed at the gorgeous Francis Marion hotel at the intersection of King and Calhoun Streets.

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My room had a vanity, a desk, an incredible bed, and a nice, deep tub for soaking (which I did just about every day, because you NEED to after being out in the heat. You feel so much more human after.). I called it a "princess room" and it's exactly what it was. Blue is my favorite color and I'd love to  be able to paint my room at home this color. (I'll have more on my room renovation plan later.)

The hotel did have some water problems during Edel, but it was rectified, and I always had water for my showers and baths. :)

The attached Starbucks and gift shop were also plusses, and the beautiful lobby was great for relaxing and talking with other Edel guests.

Also, the location right on King Street was great for shopping and catching the CARTA DASH bus (the free trolley that takes you around Charleston). There were three pick-up points within a block of the hotel, so win right there. And being across from Marion Square meant simple access to the Farmers Market on Saturday morning, where I got my sweetgrass basket.

III.

This is what you need to know about CARTA's DASH trolleys: The "stops" on the map aren't the real stops. You have to look for the signs that have the appropriate numbers. They stop a lot more than the map suggests they do. This isn't a bad thing--it just means you have to be aware where the appropriate stops are for your bus. (Route 210, 211, or 213) Together, the three of them will take you to most of the city's main areas. We took the trolley all over the city and since it's free, it's very economical. Your other options are walking, your own car, a pedi-cab, or a taxi.

A pedi-cab driver waiting outside the Francis Marion.

While they usually ran pretty well, note that they don't run much past 8 Sunday-Thursday, so plan accordingly. And also, the buses can stop at weird times/places for no apparent reason (we stopped at one point for no reason, and the bus driver just left us at the curb....it was tres strange.)

IV.

One can't talk about Charleston without talking about food.

We went to a few restaurants, so let me break them down for you:

Hominy Grill: This was our stop on Friday for lunch. The shrimp and grits were amazing, as were the fried green tomatoes. For dessert, I had Carolina Jam Cake, and my parents had the Hummingbird Cake. The food more than made up for the fact that they don't take lunch reservations, so you are probably going to have to wait outside. Fortunately, they have beverages so you don't die of heat exhaustion, and there are benches. My advice? Get there EARLY, and make dinner reservations.

We're talking about Travels in Charleston, SC during Seven Quick Takes Today! @emily_m_deardo

But really, it's all worth it for that food.

Poogan's Porch: Anytime I walk into a restaurant and see "Hail to Pitt!" scrawled as part of an autograph, I get happy. Poogan's, on Queen Street, has had a number of distinguished guests, including Bill Cowher, Jodie Foster, Jim Carey, Barbara Eden, Barbra Streisand, and Giada di Laurentiis. And let me tell you, the food and atmosphere tell you why immediately.

The biscuits are the best biscuits I have had in my entire life. I am not exaggerating. They are like clouds with delicious honey butter. I can't even tell you have amazing they are.

Mom and I chose the buttermilk fried chicken for our brunch option, and this was also the most amazing fried chicken. It wasn't greasy, it was crisp and crunchy, and it was so moist. It was basically amazing. Everything about this meal was magic. (Yes, I know, I used "amazing" a lot. I'm sorry. I can't help it.)

Also--collards are spicy! I had no idea!

Talking Charleston travel on the blog today! @emily_m_deardo

Queen Street Grocery was home to our first Charleston meal, and it also did not disappoint. I had cold-pressed coffee and a delicious crepe with ham, goat cheese, and dill. It's very local and very friendly, and this was one heck of a crepe.

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Carolina Ale House was our last meal in Charleston (Sunday night). I wanted a burger by this point, and this was recommended by the hotel staff, so we went and enjoyed. They have a patio and since they're three floors up, you'd have a lovely view of Marion Square and the surrounding King Street area. It's a sports bar with a diverse menu and great burgers.

V.

Speaking of King Street--let's talk about shopping, shall we? :)

We went up and down King Street a few times, and here are some of my favorite stores/places:

Blue Bicycle Books: used, new, and rare books, with a store cat (!) and lots of signed books by Southern authors, especially Pat Conroy. A small, but fun space, and a must for book lovers who want to indulge in some Southern Literature.

Croghan's Jewel Box: Home of their Goldbug line (I bought their Goldbug Bee earrings, which I love!), this store stocks all sorts of beautiful jewelry and estate sale items.

Rewined Candles: You like wine? You like candles? Look no further. This local company takes used wine bottles, cuts them in half, and fills them with candles that smell like wine tastes. The sangria is so fragrant!

(A lot of the rest of my souvenir grabbing I did at Edel, and you can find my recommendations here for some great Catholic companies!)

VI.

If you're looking for a place to go to Mass, The Cathedral of St. John the Baptist is a beautiful choice, and they also have a great organ and organist.

The Charleston City Market was fun and was located near Poogan's Porch. It's one of the oldest city markets in the country, and parts of that are evident (no air conditioning except in one area), but it has some fun things.Are parts of it touristy? Well, yes. But some parts are also really neat. Definitely come and explore.

My parents also enjoyed visiting the parks by the waterfront, which they did while I was Edel-ing, and they took a carriage tour via Palmetto Carriage.

VII. Yes, it's true--the South is a very friendly place. I liked having doors held for me (even if no one called me 'ma'am' this trip, sadly!) All of our waitresses and the people in the hotel were super friendly and helpful, which made the trip that much more enjoyable. I enjoyed my time in Charleston and I hope I get to go back soon!

Daybook No. 98

books, Daybook, Edel, travelEmily DeArdoComment

daybook tag

Outside my window:: Sunny but also cloudy, if that makes sense. I guess the weatherman would call this "partly sunny"? Or "partly cloudy"? (I never did understand the distinction.)

In the CD player:: 1776 soundtrack.

Wearing:: My PJs. I know. So unexciting. But all my pretty clothes are packed away for vacation!

Reading:: Reclaiming Catholic Social TeachingThe Whole World Over; Mansfield Park; Lisette's List. I also have a bunch of books packed for vacation, including Middlemarch, The Forsythe Saga, The Girl On A Train; A Memory of Violets; Mr. Penumbra's 24 Hour Bookstore, and a few more.

Yes, I bring lots of books when I go on vacation. It's often like this:

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Links you may have missed:: Jane Re-Read: Pride and Prejudice; Sketchbook Skool; The Declaration 

Crafting:: I"ve got some knitting packed for Edel, because there are going to be excellent knitters there, and I need someone to teach me to purl consistently! I've also got my scarf and washcloth still on the needles.

From the kitchen:: Not much, since we're leaving soon! I'm looking forward to excellent Charleston food!

Keeping House:: Cleaning before I leave--making sure all the trash is out, and things are generally tidy, so when I come home it won't be a disaster. And of course, packing.

Fitness: Today is a yoga day, and tomorrow is a gym day. I am packing gym clothes for vacation (the hotel has a gym), but I think the normal run of things might be enough! We'll see, though. Better to be prepared, right?

Prayer:: Really trying to keep to my "horarium", as I'm calling it. That means prayer in the morning (lauds) with some devotional reading; midday prayer (noon) if I don't make it to Mass; Divine Mercy chaplet and Office of Readings at 3:00 (and rosary, if I have time); Vespers between 5 and 5:30 (with rosary after, if I didn't get to it already), and compline between 7:45 and 8:45, depending on what's going on. This is, actually, a copy of a few monastic schedules. It's not every hour of the office, but it's a majority of them (It's four, and there's seven hours of the office). As a Lay Dominican, lauds, vespers and rosary are required every day. But I really like the office of readings, and compline is special to Dominicans. And of course, Daily Mass when I can.

There will be an adoration chapel set up at Edel on Saturday, which makes me crazy happy.

This week:: Um, vacation? :) Edel is Friday and Saturday. So excited for that. 10 Year Anniversary is on Saturday as well! Rejoice! :)

Some cuteness: Princess Charlotte and her family at her baptism yesterday. The baptism was held at St. Mary Magdalene church in Sandringham.

Daybook with Royal Baby Photos! @emily_m_deardo

Royal Christening @emily_m_deardo

Princess Charlotte at her christening @emily_m_deardo

Seven Quick Takes No. 79--A Trip to Pittsburgh

7 Quick Takes, travelEmily DeArdo2 Comments

It's Friday, so that means Seven Quick Takes! @emily_m_deardo

I.

We spent last weekend and part of this week in Pittsburgh celebrating my grandma's 85th birthday.

Me and Grandma

 We celebrated by taking a dinner cruise on the Gateway Clipper Fleet, which was a great meal and boat ride around the three rivers of Pittsburgh. We sailed by PNC Park, Heinz Field, the Point, and other Pittsburgh landmarks. Quite a bit of the family-- though not all--was there, and it was a fun way to celebrate.

 

Dad and my cousin Diane's youngest child.

II.

One of the best parts was seeing my cousin Diane, and especially meeting her newest baby (above with Dad). She has two older daughters, whom I'd met before, but I'd never met this little guy, who turns 1 in August.

Diane and I with her little guy.

III.

The next day we went to PNC Park to see the Pirates beat the Phillies in extra innings. I'd never been to a Pirates game where they won, so I was pretty excited about that! Dad taught me how to fill out the scorecard that was in the game program, so I feel very educated in the Ways of Baseball. (Sort of. I find baseball always has new ways to confuse me.)

Our seats were behind home plate and under the overhang of the upper deck, so we were in shade, which was great when it was 85+ degrees.

Pirates win and the Parrot takes the mound.

III.

 After the game we had another party at one of my aunt's houses. She has a pool and her husband grilled, and there was, of course, jello marshmallow salad, because it's not a family gathering on my mom's side without jello marshmallow salad.

Kids like cookouts.

These kids....

Grandma received cards and presents, and then there was Bethel Bakery cake, which is the Best Cake in the Universe. Not kidding. Our swimming was curtailed because of a huge thunderstorm that opened up, but that didn't deter the youngest from having fun....

ballooooonnnnns!

IV.

Diane's oldest girl (seen above, in the pink glasses) and I:

Me: So, Susie, what's your favorite movie? Susie: Frozen.

Me: OK. What's your favorite song? Susie: (As if I am deeply, deeply stupid) "Let it Go." Me: Well, there are other songs in the movie. Susie: No there aren't.

V.

Monday we went to Kennywood, where I hadn't been in over ten years, so it was nice to be back, and Diane's husband had never been there at all. Susie and I had fun riding rides, but when I took Bridget on the carousel, she seemed a bit wary, until the ride starting going. She also really enjoyed the ice cream cone.

I had to rescue this ice cream from hitting the pavement more than once.

 VI.

Kennywood really does have things for everyone, which makes it fun, but my grandpa's favorite ride was "The Restaurant", so we had dinner there. It's a large cafeteria style place and it has good food and, the real winning point, air conditioning. It was hot, so we got a lot of water rides under our belts, and then dried off with roller coasters.

VII.

Of course, some of us couldn't handle all the excitement:

Being this cute takes a lot of work.

Daybook No. 97

Daybook, transplant, travelEmily DeArdo2 Comments

(it's back!)

daybook tag

Outside my window::

Sunny through thin white clouds. It's not going to be very warm today--well, warm for June--so swimming is probably out, but that's OK!

Wearing::

Jeans, a bright blue v-neck t-shirt, and flats.

Reading::

Working on Northanger Abbey. I finished Prodigal Summer yesterday, and man, I wish Barbara Kingsolver would write a sequel. It's that kind of novel where you want to stay with the characters for a long time, even after the book is finished. I'm reading The One Thing is Three for my spiritual reading. The rest of the fiction pile includes The Forsyte Saga and A God In Ruins, and then I've got What Matters In Jane Austen and Jane Austen's England. So a variety of things on the reading pile!

In the CD player::

The Light in the Piazza, celebrating Kelli O'Hara's Tony win.

Writing::

This week I'm doing something different with LA--I'm going back to doing the link-ups/weekly features that I've sort of been neglecting amidst the new writing plan. So tomorrow is the Yarn Along, Thursday I'm talking about Sketchbook Skool, and then Friday we'll have Quick Takes. I'm also going to get some things pre-written because I'll be in Pittsburgh until Tuesday.

The Dominican section of the memoir continues apace. It's sort of a complex section to write but the goal here is to get it down into a physical form on "paper" (or, in a Pages document). Then I can revise it. I'm hoping to have the section done by the end of the month so that in July, when I'm back from Charleston, I can start sending out queries and book proposals. (EEEEEK)

Creativity::

You'll have to come back tomorrow and Thursday to read about that. :) But really, it's been really interesting in this area lately.

Health stuff::

So yesterday was my Annual Clinic Day of Testing for Transplant Guys. :) Basically, all the yearly tests we do, I did yesterday. That involved lots of blood-letting, full PFTs (Pulmonary Function Tests--"full" meaning more than just the basic test I do every visit. We checked gas diffusions in my lungs and some other fun things), a CT scan of my lungs, bone density scan, and an abdominal ultrasound, which looks at my spleen, liver, kidneys, all that sort of stuff.

I lost five pounds "officially" in clinic (I told the dietician that I had lost 10 lbs at one point, but the loss doesn't want to stay there, sadly), and the PFTs went up four points. So win to that correlation. Everyone's happy with that. I haven't gotten the results back yet from the other tests. (Other than things like my regular chest X-ray, which looked fine and dandy--we saw that in clinic.)

Today I'm going to see my ENT so he can check out my sinuses. I see him about every six months, and about every two years, we do the sinus surgery. This is because even though my lungs don't have CF, the rest of my body does, so we still have to keep the sinuses happy. They tend to fill with the CF-quality mucus and that can be a huge breeding ground for infection. Fortunately, I don't have nearly as many sinus issues as some other CF folks I know.

Pondering::

I normally don't talk to many--if any--other patients when I'm at Children's. Part of that is because I don't really talk in waiting rooms, at all, and partially because a lot of the time, I'm alone. In clinic, I'm in my own room, and in radiology, the transplant/cancer patients sit in the radiology hallway itself, not in the general waiting room, because of concerns about sick people.

I'm really familiar with the radiology hallway. It used to be main radiology for the entire hospital, so I've come here as an ER patient, as a CF outpatient, and in the days after transplant, at 6 AM, before the hospital was really "up", so I the chances of me running into a sick person (or anyone else) were really slim. I know all the radiology techs really well, and know some of them by name.

There are three chairs set up outside the main waiting room door for transplant/oncology patients. Sometimes it's me and other transplant patients who are being seen that day (we all have the same routine--blood work, x-rays, clinic), but mostly it's just me.

Yesterday there was a small family: a boy, a girl, and the mother. The kids looked to be in high school. I knew the boy was a transplant patient because 1) he was wearing a Dash for Donation shirt (it's the annual Lifeline of Ohio race), and 2) he had a mask on. Most of us wear masks in the hospital. I hate wearing them so I generally don't. (yeah, I'm a rebel.)

But the boy looked so sick. I couldn't tell if he was pre or post-transplant. He was so thin I could see the ligaments in his legs around his knees, the tendons popping out. His shirt hung on his, and he was in a wheelchair. He didn't really look anywhere, other than vaguely at his lap. His sister was plugging away at Facebook on her phone, but he just sat there, vaguely thinking about something.

I knew that look. I'd been there. It's the look of not really having the brain power to do anything else but tend to the function of your body. Breathe, sit up. Breathe.

He went back for X-rays, and I talked briefly to his sister--small things, about the waiting area, her sparkly phone cover. Her brother came back quickly and they were gone, heading up to clinic.

The radiology technician called me to a room. "He's rejecting," she told me.

"How far out is he?"

"Five years."

Ah, five years. Five is a magical number. About half make it to five years--it's a little less than that, for girls. UNOS (United Network for Organ Sharing) doesn't even have 10 year stats on their website, yet, for lung transplant patients. At hitting 10 years, I'm sort of a statistical anomaly. Five years is becoming more common, but 10 is still out there, and the people I know who are 15+ years have had two transplants.

I am extremely, extremely lucky. And it could all change, but right now, the fact that I'm this far out, and that I'll be celebrating my 10 year mark in a month, is incredibly fortunate. am incredibly fortunate.

Plans for the Week::

I have a Summa Theologica class at church on Wednesday--this just started last week--which means I have to read Question 2 of Part 1 today so I'm ready to talk about it tomorrow. :) On Friday I have another doctor appointment and then I leave for Pittsburgh on Saturday!

(note: that lovely photo of bluebells? Elizabeth Foss took that. :) I hope she doesn't mind that I borrowed it from her website! It's just so gorgeous.)

Seven Quick Takes No. 78

books, family, Seven Quick Takes, transplant, travelEmily DeArdoComment

It's Friday, so that means Seven Quick Takes! @emily_m_deardo

I.

mmmm. Summer Friday. Those are beautiful words in the English language, no? :)

II.

Since it's summer, more people read. You can, of course, join the Jane Re-Read (Sense and Sensibility is what we're talking right now). I'm still reading Prodigal Summer and Northanger Abbey. I just finished I Believe In Love, about St. Therese of Liseux and how she can lead us to a deeper spiritual life, and I really liked that one. There's a lot to ponder and I'll definitely be reading it again. (Who am I kidding. I read everything again....unless it's Moby Dick or Portrait of the Artist as a Young Man. Shudder!)

I keep debating if I should read Girl on a Train. Yes? No? Thoughts?

III.

My 10 year transplant testing appointment is on Monday. To put this in perspective: UNOS (the United Network for Organ Sharing, which "does" transplants in the U.S.) doesn't even have 10 year survival rates on their chart. The last one they have is 5 years out, and for women, that rate is 46.1%. I read somewhere that 10 year survival is around 30%, but I forget where. So, for ONCE, the odds have been playing nicely with me. I rejoice in this. The actual 10 year date is in July, but we do the testing in June, usually.

IV.

I've discovered that a lot of women don't know basic maintenance things. This sort of scares me, ladies. You should know to put gas in the car (and what kind of gas), how to jump a car battery, how to use tools, how to unclog a toilet. Even if you're married, your husband isn't aways around to fix things! I'm amazed at how many women I know who can't do any of these things and I want to be like, girls. Come on now!

V.

My brother's girlfriend sent me this photo of him at Disneyland, and I just love it:

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As Br. H said, "How many Evil Empires can you fit in one picture?"

VI.

I've started swimming again--yay! But man, the muscles feel it when you swim hard for the first time in a season. They rebel the next day. But it's so good to be in swim season again, I do not mind at all.

VII.

Almost time for Edel 2015 in Charleston! I'm so excited!! I've never been to South Carolina and I can't wait to meet all the amazing women who will be there!