"Our human rights derive from our humanity"

While in Houston, I (of course) went to church with my cousin and her family, and heard an amazing homily, centered on the decision in the Dobbs case. I took so many notes I thought I’d share them with you. It was a long homily, so this is just a taste.

Rogier van der Weyden, The Magdalene Reading. The National Gallery, London.

“The government does not and cannot give us rights. Our human rights do not come from the US government, our human rights derive from our humanity, and derive from the fact that we are human….{The Declaration of Independence states that] We hold these truths to be self-evident. We are endowed with those rights by our Creator and these rights are inalienable…

“To enjoy liberty, we must enjoy the exercise of the right to life. There is no pursuit of happiness without life. It’s inalienable…

“Legal does not equal just. We have the obligation to overturn unjust laws and to come to the aid of the oppressed. Slavery, women’s inability to vote, racial segregation and Nazism were all legal.

“We need, as citizens, to participate in the democratic process. There is much more to come. We must pray. Changing hearts and minds is a much more formidable task [that what has just been done]. We must have charity in all things and we need to treat everyone with respect. We must continue to work and build a culture of life. We must care for people, and show the mercy and forgiveness of God to everyone.”

Deo Gratias!

On the Solemnity of the Sacred Heart of Jesus, it is so appropriate that one of the worst SCOTUS decisions in history is overturned, joining Dred Scot and Plessy on the ash heap of history.

Every since I was old enough to know what abortion was, I—and so many others—have prayed and worked for today. This is a victory for the pro-life movement, and I don’t think it’s a bad thing at all to take today and celebrate and give thanks for this.

I am happy on a more personal level as well. If you’ve read my book, you know that I have often had people tell me that people with genetic diseases are not “worthy” of living, because our lives are too hard or we suffer.

Ninety-six percent of babies who are discovered to have CF in utero are aborted.

Today, that number will begin to decrease, and more people like me will have a chance at life.

It’s important to note that Dobbs doesn’t make abortion illegal in the United States. Instead, it throws the matter back to the states (which is where it should have been all the time.). Every state can determine their own abortion laws.

This is not the end of the pro-life movement. In the words of Winston Churchill, “It is the end of the beginning.”

We know that there is work to do to change perceptions. We know that more pro-family legislation is needed, and we need to continue to support the work of maternity/crisis pregnancy homes, pro-life charities, and other supportive networks.

If you want to contact your state legislators about this, be sure to do it politely (always, please, especially if you’re calling them).Let them know that you support legislation that helps the vulnerable. See what your state already has and then work to support it, financially, materially, or with your time. I’ll be compiling a list of resources later, but you can always start with the Sisters of Life, who do such great work in the US and Canada.

And let’s stop talking about how children are barriers to our lives, OK? Let’s stop talking about how women have “fewer rights” then men. Women, it’s time for us to stop believing the lies that the sexual revolution taught us. Sex is not free. Having sex with multiple partners is not liberating. Let’s reject this mindset for the lie it is. Let’s teach our daughters that. Let’s not continue to perpetuate a lie—which is really a malicious, twisted lie—that sexual freedom is a good thing, that we are “entitled” to do whatever we want, when we want it. That’s a perversion of our freedom.

There are certainly times when women find themselves in situations that they didn’t expect. The pro-life movement is there for them. We need to champion life in all its stages, and Dobbs gives us the framework to start doing that legislatively—but it also gives us the freedom to start doing more outside of the statehouses, to step up our advocacy and demonstrate that it’s truth that sets us free.

Women deserve better than abortion. Children deserve better than abortion. We all deserve better than a culture that takes innocent lives and treats them like garbage, and cloaks its satanic mission in words like “care” or “health decisions” or “choice”.

Today is a victory for life.

Let’s celebrate it, and then continue our work.

(NOTE: normally, I let the combox be totally open. But I will delete any comments that have bad language on this post, OK? I would do that anyway, but….just a reminder.)

Seven Quick Takes--Sinuses & Stats

-1-

Hey everyone! Welcome to fall. (AKA, the return of hockey season!)

-2-

On the blog this past week, I wrote a piece that I think is pretty important, and if you haven’t read it, here it is: Lies, Damn Lies, and Statistics.

If you’ve been a reader here for any length of time, you know that I take the idea that “everyone has worth” seriously. This is because I have been frequently told that because my genetic code is messed up, my life is “too hard”.

Life is hard for everyone. Everyone will suffer. Everyone will die. I wrote a book about this, for Pete’s sake.

Yet some people think we can control suffering. We can control unhappiness.

We can’t.

So whenever the ugly head of eugenics rears its face, I try to play whack-a-mole with it and beat it down into the dust where it belongs. This piece is my latest Whack-A-Mole entry, but with the caveat of a really, really grim statistics at the beginning.

95% of children with CF are aborted in utero.

Anyway, read the piece to get all the sad facts and see exactly how I feel about this. :)

-3-

Happy news, yes? :) How about some Patty?

-4-

Also in HUGE news, I’m an auntie to a little girl! I have a niece coming! Her name is Madeleine Grace and she will arrive in the world in January and I am so excitedddd. (She is my sister and her husband’s little girl)

This is the first grandchild for my parents, so obviously we are all really excited.

-5-

I’m having sinus surgery in December! My ENT had a CT of my sinuses taken and apparently there is lots of “mucus and junk” hanging out in my ethmoid sinuses (which are really cool, btw), so he’s going to go in, get the crap out, and then flush in lots of antibiotic stuff to keep things happy!

This is all part of CF. The mucus that’s really think and causes so many issues in my lungs also causes issues in other places, mostly the sinuses, the pancreas, and the reproductive tract (most men with CF are sterile—not sure if it’s all, but most are.) For me, my transplant took care of about 98% of my CF issues—but not my sinuses. Fortunately I have really good sinuses (I had a friend who needed sinus surgery every nine months) but it’s been about 10 years since I had a clean out and that means I’m overdue. So, December! Surgery! Yay!

-6-

Dad and I are reading the Cormorant Strike series and we love them. I just started watching the TV series. Have you read these? I’m not super into mysteries/crime, but I love these. And I mean it helps that they’re ghost written—it’s actually JK Rowling who write them. :) So as a massive Harry fan, that helps. (I didn’t like her first adult novel, btw. So that’s why I was slow to pick these up. But these are good.)

-7-

Knitting? I finished the Beatrice Shawl, and I’ve got four colors for a mystery KAL.

Beatrice shawl on the mats

The KAL is a 6 week thing, and I have five of the clues so far, so I joined late, but I’m really chomping at the bit to get started. I just needed some more size 4 needles, so once those arrive I can dive in!

The "Brave New Us" Podcast Interview is Live!

I was so privileged to be interviewed by Samantha Stephenson for her Brave New Us podcast! This episode is about genetic illness and genetic manipulation: Should we do it? Why or why not? I had a great time talking to Samantha and I hope you enjoy our conversation! You can listen here.

Billy Love

Getting to meet Billy on Sunday

The first post I wrote about Billy is, far and away, the most popular thing I’ve ever written.

I’m so glad that so many people got to know this incredible little boy and his fabulous parents. I’m so glad—and overwhelmed in a good way—by all the comments, prayers, and e-notes I’ve received saying they are praying for Billy and his family.

Sadly, Billy passed away in his father’s arms this morning (Tuesday, March 23).

He was loved, and so cared for, until the end.

These six days they had with him were an incredible gift from God. They were a miracle. I’m sure about that. Billy wasn’t expected to last an hour. Instead, he gave his parents almost a week to rejoice and delight in him—and for us to delight in him as well.

Tiffany got to nurse him. Bill changed his diapers. They slept with him on their chests, cooed at him, took videos, rocked him, and loved him. Billy grasped their fingers and looked into their eyes. His grandparents and aunts and uncles delighted in him. And so did all of us.

The day they left the hospital, the membrane that covered Billy’s encephelocele began to break down. The neonatologist said this was to be expected. At home, the brain tissue began to bleed. But through it all Billy and his family had the love and support of their family and the wonderful hospice nurses from The Resort. Billy was kept comfortable and was always in someone’s arms. He was unbelievably loved, and only knew love his entire life.

I was so blessed to be able to see him. I was so blessed to see my best friend hold her child, her first-born, to mother him, to see Bill hold his son against his chest and feed him. I stroked his little ear and marveled at his tiny fingers and even tinier nails. I delighted in him.

On Sunday, we heard the gospel that contains my life verse—Jesus healing the man born blind. My verses are taken from the beginning of the gospel’s ninth chapter:

As Jesus passed by, he saw a man blind from birth. His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?” Jesus answered, “Neither this man nor his parents sinned. He was born blind so that God’s works might be revealed in him.”

I don’t know why I was born the way I was—but God does. I don’t know why Billy was born the way he was—but God does.

Maybe we were both born this way so that we can glorify God. I certainly hope so. That’s what gives me comfort, and that’s why I consider this my life verse.

Billy’s short life glorified God. His parents’ faith and love glorified God. The support, community, love, and prayers of all of you for this little family glorified God.

A few weeks ago, Bill and Tiffany’s church had a luncheon for them, to celebrate Billy and to provide support for Tiff and Bill. At the lunch, we made a quilt, where every guest was invited to write something to Tiff and Bill on a square. The quilt was draped over their couch when I went to visit. It is beautiful.

I had brought my Bible with me, and I spent time going through it, wondering what to write. Finally, I settled on one of my favorite verses. It’s the verses that begins the epilogue of my book.

“God himself will be with them;
he will wipe every tear from their eyes.
Death will be no more;
mourning and crying and pain will be no more,
for the first things have passed away.”

 And the one who was seated on the throne said, “See, I am making all things new.” 

—Revelation 21: 4-5

Today’s Mass reading from Isaiah talks about a time when infants will not die after a few days. When I heard that at the streamed Mass this morning, I almost dropped my coffee mug. Billy was dying, and here Isaiah spoke of a new world, where we would all live the lifespan that God appointed us. There would be no more crying, or death, or sadness. We would all live together to old age. Isn’t that what every parent wants for their child?

We all loved Billy. I thank you for all the love that you gave this family, that you continue to give this family. Please pray for them. At this time, the state of Ohio is essentially shut down—I don’t know what’s going to happen with the funeral. Thankfully, their families are local, so they have that support here in town and they can be together. Please continue to pray for them.

Circle of Life

“We are not some casual and meaningless product of evolution. Each of us is the result of a thought of God. Each of us is willed, each of us is loved, each of us is necessary.”

— Benedict XVI

Friday the annual March for Life was held in Washington, D.C. 

It was also Holocaust Remembrance Day. 

And the day that President Trump signed an executive order lowering the number of refugees that can enter the United States, as well as denying entry to certain refugees for 90 days, and a host of other things pertaining to refugees around the world. 

What do these things have in common? 

They're all about life issues. 

We in the pro-life movement are often accused of only caring about people "before they're born", and that if we really cared about people, we'd make contraception more widely available, so we wouldn't "need" abortions. We'd also support social programs that help people instead of cutting them. 

There's a lot to untangle there. And I wasn't even going to write about this, because people know how I feel (I don't really sugarcoat it). But I feel like there needs to be some sort of response to all this, even if it's my inadequate one. So here we go. 

First, there is no barrier to getting birth control. I really don't know why people think this. Condoms are available at any corner drug store or grocery. There was a basket of them in the entryway of my campus health center in college, free for the taking. Birth control pills can be prescribed by any OB-GYN in the nation. Yes, you have to pay for them. Shock. I'm of the opinion that things like birth control and Viagra should not be free, especially when people have to pay thousands of dollars for drugs that keep them alive. If you want to have sex, and you don't want to get pregnant, take the proper precautions. Be responsible. If you do get pregnant, abortion is not "health care." It is not birth control. It is killing a human being. Full stop. So, in order to avoid pregnancy, either don't have sex, or be responsible. And don't tell me that you can't afford a condom. And if the guy won't wear it, then, as a self-respecting woman, you need to dump him fast, because he is not a responsible dude who cares about you and the potential consequences of actions. Don't be dumb, ladies. Please. *

We care about unborn children because they need someone to care about them. They have no voice. They can't make cool YouTube videos or get covered by CNN as they hold a rally. They only have us. And if the most fundamental right--the right to exist--is denied, then how can we say we're for peace anywhere else? Is the logical failure apparent yet? It should be. We have to start at the bottom, at the bedrock. All life is worthy of being protected. 

Supporting social programs does not mean that you support government programs. Most of the pro-life people I know (If not all of them) also support pro-life charities that help pregnant women. They're just not government-run programs. They're private charities/organizations. Some examples are: 

Sisters of Life

Mary's Shelter VA

Pregnancy Decisions Health Centers

These are just a very, very few places. But there are so many more, that exist all over the country, and are spreading. Don't say that the pro-life movement doesn't care about these children and these women. Because we do. Small government conservatives generally don't want government doing a bunch of things. We want communities to do them--and they are. 

Now, does that mean that there shouldn't be a basic floor that people don't fall beneath? Sure. But that's sort of outside the scope of this discussion, and good-hearted and good-intentioned people can disagree on how best that should occur. 

Now, if we are to be pro-life in the best sense that does mean respecting all life--realizing that all life has value. That does mean that the death penalty has extremely limited applications (as the Catechism of the Catholic Church says, here). That means we don't kill people who are old, or terminally ill. It does mean that we should help refugees. The vetting process is intense.  Now, does that mean that nations should let in whoever wants to come to their country? Well, probably not. States are sovereign and they are allowed to make decisions that they feel are necessary to protect their people (and immigration laws exist for a reason. But we're talking about refugees, here, not "regular" immigration.) But the Church says in the catechism that: 

2237 Political authorities are obliged to respect the fundamental rights of the human person. They will dispense justice humanely by respecting the rights of everyone, especially of families and the disadvantaged.

The political rights attached to citizenship can and should be granted according to the requirements of the common good. They cannot be suspended by public authorities without legitimate and proportionate reasons. Political rights are meant to be exercised for the common good of the nation and the human community.

Refugees are certainly among the disadvantaged. We shouldn't act out of fear, but out of logic, out of consideration for all sides. And this extends to administrations on both the left and the right. 

And Holocaust Remembrance Day? 

Jews tried to flee Europe in order to escape Hitler and the rise of Nazism. And the U.S. did not respond well. The book Alex's Wake tells the story of Jewish refugees who were coming to Havana, but were denied entry there and in the United States and Canada, and forced back to Europe and the Holocaust. 

Anne Frank's father tried to arrange immigration to the U.S., but was denied. And we know how that story ended.

We look back on these stories and ask, how could the government have made those decisions? Probably because of fear. How could the U.S. government incarcerate thousands of Japanese-Americans? 

I think we have to learn from history. And we have to support life. I can't imagine being one of the people in the airport, thinking they're going to be a place of safety, and being told that they can't leave--that they're doomed to stay in a war zone. Think about that for a second. 

We have to protect life in all its stages. We cannot allow people to become "other" because we are all children of God. No one is other. 

We cannot look away. We can't turn aside. 

We might disagree on policy decisions--how best to educate children, how best to provide health care to people, what the tax rate should be. But we cannot disagree on the fact that all of us are human beings, and all of us are God's. We are responsible for each other at a basic level. 

Babies. Jews. Refugees. 

People. 

 

________

* That being said, I'm Catholic, and I don't believe sex outside of marriage is moral, nor is the use of artificial birth control inside of marriage. I know not everyone feels that way. :) I'm talking from a policy perspective here, not a religious one. 

Seven Quick Takes No. 113

I. 

First up--this week's post roundup: 

SITS girls Summer Scribbles No. 1

Catholic 101: Those "Screwball Apostles"

II. 

I'm going to Pittsburgh this weekend for my godson/cousin's high school graduation. He actually graduated last week, but the party is this weekend. I can't believe he's that old, first off. I was fifteen when he was born! He'll be going to Pitt to study computer science. He's a good kid, and I'm so lucky to be his godmother.  

III. 

Just a reminder: my Jeopardy! appearance is July 18th!!!

IV. 

(Yes, that merited the cool font. You know it did.)

I'm actually sort of nervous about people watching it. I can see the whole slew of tweets and Facebook postings of "YOU IDIOT! How did you not know THAT?" And honestly, there's at least one question I'm still beating myself up about. :-P 

I did manage to impress Alex T., though. I did. But that is a story for the day the show airs. :) 

V. 

I did manage to whip the sketchbook out this week, not once, but TWICE! Oh yeah! 

Lunchtime sketching--lamp and a wonky pitcher. :-P (I was trying to do single line contour on that guy, so....)

Plant at Dawes Arboretum. 

VI. 

California legalized assisted suicide this week. Why that's a bad idea. 

VII. 

And my hockey team is continuing to hate me--game 6 in San Jose.....

Seven Quick Takes No. 112

I. 
Previously on the blog, here (in case you missed any of it!): 

Sugarcoating Suicide: Me Before You
Ordinary Joy
Summer Reading

That first one has become particularly relevant since I found out that the state of California will legalize assisted suicide next week. 

II. 

In My Summer Reading post, I talked about Eligible. Well, I finished it yesterday, and it was terrible. Terrible isn't really a strong enough word for how bad it was, acutally. If you are at all tempted to read it, please, for the Love of All That is Holy, go pick up the real Pride and Prejudice, or watch the Only Version That Exists In My World. 

III. 

Also in the world of Jane, I'm re-reading Persuasion. If you haven't read that one, go for it, please. It gets overlooked sometimes!

IV. 

If you're a Facebook friend of mine, you're probably wondering why, around 8:00 every other night, my feed becomes incomprehensible with sports jargon. It's because the Penguins are in the Stanley Cup Finals, and I adore hockey.  

My first NHL game was against the Hartford Whalers (Wow, I just dated myself) at the old Igloo--the Civic Arena-- in Pittsburgh. I think this was in 1990. But anyway, I have been a lifelong fan since then. Poor Mary, when we were in LA, had to put up with my attention totally deviating from her if hockey came on the TV when we were eating. I'm like a dog going "SQUIRREL!" 

So, until the series is over (and hopefully the Pens will sweep and it'll be over next week, and we'll have our Fourth Stanley Cup victory), there might be some weird Facebook posting. :) 

V. 

If you're wondering why I root for Pittsburgh teams when I live in Columbus--it's because my parents are both from Pittsburgh. In fact, they were born three days apart (although in different hospitals), and Dad is a Pitt and Carnegie Mellon graduate. Mom used to work at Pittsburgh Children's before she married my dad. So all of us kids were brought us as Steelers, Pirates, and Penguins fans, and it stuck. Even though my brother went to OSU, we're not very strong OSU fans. 

And I hate calling it The Ohio State University. Some of my friends do it just to spite me. :-P

VI. 

It go so hot, so fast here. It's like we didn't really have spring at all. It was cold, and then "boiling lava hot" (as Jim Gaffigan says in his Hot Pockets sketch). Oh well. At least the pool's open and my A/C works!!!! 

VII. 

Finally--do any of you use fountain pens? I just started and I have to say, I love them. I feel very writerly and Jane-ish (although I know Jane didn't use them). Ink spots on my fingers? Fun! 

Sugarcoating Suicide: Me Before You (Or: Why you should not read this book or see this movie)

I get really, really tired of defending my existence.

If it isn't people telling me that my transplant was immoral, it's people who think that assisted suicide for disabled people is a good idea, and a sign of love. 

Yes. Because, you know, nothing says I love you like KILLING YOU. 

Let's look at the cognitive dissonance, here: When someone--say, Robin Williams--commits suicide, social media is flooded with messages like, "suicide isn't the answer", "please get help-- don't be afraid of getting it", "I wish people knew that they could talk to me if they're ever feeling like this." Etcetera. You all know how this goes. People are sad, as they should be. People continually say that suicide is NOT a good option. And it's not. 

But: when it's a disabled person who kills himself, oh, well, that's love. 

And that's exactly what happens in the new movie Me Before You, based on the novel of the same name by JoJo Moyes. In it, a woman falls in love with a quadriplegic man she's taking care of--but, oh, he wants to kill himself. Because, you know, life in a wheelchair isn't worth living. And if she REALLY loved him, she'd go with him to Switzerland and be there when he kills himself. Because that's love: supporting you in all your bad choices! 

No. You know what love is? Love is what Mary Lenaburg and her family did for her daughter, Courtney. Love is what Kelly Mantoan and countless other parents do every day for their kids who need their help. Love is my mom washing my hair when I'm nineteen years old and her back hurts, or my dad staying up during countless ER runs with me, or my siblings learning how to reconstitute and push IV drugs. THAT is love. 

My life isn't perfect. Show me someone who says his life is perfect, and I'll say that this person is a liar. Did it suck, being twenty-three years old and not being able to brush my teeth without sitting down after? Does it suck now, when I have to ask people to repeat things because I don't always understand them, or when my CI malfunctions? Yeah. But I would never, ever say that that was worth being dead. Obviously, I like my life just fine, since I've been to the edge of death and come back from it five times. I must think that something is worth living for. 

When we start sugarcoating assisted suicide--like in The Sea Inside, Million Dollar Baby, and The English Patient--we are trying to make it morally acceptable. We're trying to tell people that suffering is bad and we should avoid it at all costs, even by killing people who are suffering. Guys. That's not love. That's not living boldly, as the movie's tagline execrably proclaims. 

Living boldly is living the way my friend Sage does, while she waits for a lung transplant.  It's what Andi's kids do every day, whether they're running crazily at a T-ball game or singing in show choir. Living boldly is embracing life in all its highs and lows and living anyway.  

I've had people tell me that they would've aborted me, if they'd been my mom. 

To my face, people. 

* * * 

In The Giver, a dystopian novel by Lois Lowry, Jonah, the main character, discovers that what everyone calls "release" is actually euthanasia. In his community, old people are killed, people who break the rules three times are killed, even one of a set of twins is killed. Babies that don't sleep through the night when they're a year old are killed. Why? Because they are inconvenient. Because they make life difficult for the community. Jonah can't live in a system like that, and runs away with Gabriel, a baby that is slated for "release." He risks his own life to save the baby's--because if you try to escape from the community and are caught, you are "released." 

The community's highest value is ease of life. No one experiences pain. No one, actually, experiences any emotions. People take a pill every day so that they don't have emotions. Parents don't have children--they are "given" children, who are born via artificial insemination. When Jonas asks his parents if they love him, they laugh at him and say it's a meaningless word. And thus, the community medicates away their humanity--and kills what is inconvenient. 

Yeah, it's a book--but are we that far off from that? Where do we stop? 

The abortion rate for Down Syndrome kids in the U.S. is 67% In Europe, it's 92%. We are killing babies because they are imperfect. Because they are inconvenient.  This Atlantic headline pretty much says it all--why on EARTH would you keep an imperfect baby? 

People sue for "wrongful birth"--saying that they wish their babies had never been born. Not all cases of CF are detectable in utero, because there are thousands of possible mutations. So if a kid with CF is born, and his parents don't like it, they sue. They can pretty it up all they want and say they need the money for the kid's care--but it's not about money. It's about having a kid who isn't perfect, and someone needs to pay for that. Someone made "a mistake."

Jesus had something to say about this: 

You know who made the "mistake", here? It was God. And no, it's not a mistake. God did all this for a purpose, and for a reason. My crazy genetic code exists to bring Glory to God. That's why I'm here.  

Suicide is not an answer for anyone, at any time. It's not romantic and it's not brave. In the case of assisted suicide, it's reprehensible. 

Life has value beyond its utility. We are not cogs in a machine. We are human beings created in the image and likeness of God. And to purposefully commit suicide is not brave. It's cowardly. It flies in the face of bravery. 

I'm not a hero. I'm not a saint. I screw up. But the answer to challenges isn't to give up. The answer is to live the best you can, in the circumstances you are in. Love is helping people find a way to live--not by helping them die.