Seven Quick Takes--the 60th of September

Linking up with Kelly!

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In case you missed it, here’s what’s been going down around these parts this week:

Simplicity Series #1—Reset Day!

Stitch Fix Box #8!

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The reason this post is entitled the 60th of September is because this month has seemed insanely long. Isn’t there a song called “Wake Me Up When September Ends?” That’s how I feel right now. It’s just been so long. And sort of crazy.

One of the big crazy-making things is that I’m in the middle of Doctor Roulette, which I really haven’t written about here, so I probably need to catch you up.

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(If you’re not interested in medical stuff, skip this and go to point four, where I talk about BOOK THINGS!)

So, being post-transplant, and being fourteen years out, is….interesting. Obviously, I am INSANELY GRATEFUL to be at that marker. I am. Never think I’m not. But at the same time, it’s a Brave New World of Medical Stuff, because it’s rare. So when things happen, there’s not a lot of research to go on. There’s just…..talking. And guessing. And seeing what works.

Essentially, all summer we have been messing with insulin, because my blood glucose levels have been off. (I”m trying to keep this as medical jargon free, but when I say this, what I mean is my A1c, not my BGLs. If you’re confused, I can explain in another post, so let me know if you want that much detail into my life!)

So my team decided to put me on some long-acting insulin.

But……that didn’t work. First, it didn’t lower my BGLs, which I was testing twice a day, and second, insulin is a hormone. That means it can affect lots of parts of your body.

For me, that meant—headaches. Not sleeping. Weight gain (DAMN IT), and insanely inappropriate mood reactions. If Big Ben threw an interception I wanted to break things. If someone parked next to me at the supermarket, I became incandescently angry.

This is not appropriate.

And the scariest part for me? Forgetting things. Words. Ideas. What I was doing. This is not good. I rely on my brain, and words are my trade. I can’t be forgetting them! I need to be mentally sharp.

(But you’re never mentally sharp, Emily, says the peanut gallery….)

I did some digging and found out that when you have too much insulin—as in, you have WAY too much, and your body doesn’t need it—this is what happens.

And this is the problem. My body is weird. Not just the transplant weird, but weird for a CF person. I’m what’s called “pancreatically sufficient”, which is rare. It means my pancreas works like a normal person’s, not like a CF person’s. I don’t need to take enzymes to help digest my food, because my pancreas does it. I never had CF related diabetes.

And my A1c starting rising once I hit menopause—so there’s probably a connection there as well.

So, long story short, my team is sort of confused, and I’m seeing an endocrinologist the day before Halloween. That’s one reason I haven’t been writing as much this month, because things have just been crazy, but also my body has been through a lot, and I’m trying to be nice to it. Which means, chilling out, after all the non chilling out. :-P

There are some other issues, too, mainly that I don’t have a great track record when seeing endos, because they look at me and go, you’re really messed up, what do you want me to do about it?

But anyway, that’s at the end of October. Yay.

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in the meantime!

BOOK THINGS!

People are starting to ask for interviews, which is….weird. I mean, good, but weird.

The cover is 99% done. I’ve seen it. I can’t show you yet. If you want to be the first to see it, subscribe to the blog!

It’s really pretty, I like it. :)

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Hockey season starts soon and this makes me very happy!

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I am going on retreat next week, so if you have prayer requests, I am honored to take them with me! Drop them in the combox, or use the contact page.

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If you haven’t seen the Word on Fire team’s newest entries in their Pivotal Players series—Fulton Sheen and Flannery O’Connor—I highly recommend them! They’re great! Flannery is a really important influence for me, in how to live as a Catholic and a writer, and I write this quote from her at the beginning of all my journals:

I feel that if I were not a Catholic, I would have no reason to write, no reason to see, no reason ever to feel horrified or even enjoy anything. I am a born Catholic, went to Catholic school in my early years, and have never left or wanted to leave the Church. I have never had the sense that being a Catholic is a limit to the freedom of the writer, but just the reverse. … I feel myself that being a Catholic has saved me a couple of thousand years in learning to write. (The Habit of Being *)

So I love the Flannery film. It was also nice to learn more about soon to be Blessed Fulton Sheen—I had read some of his books, and I knew of him, but the film does a great job fleshing out what I knew.

(Also, in a nice twist, a college friend of mine composed the music for both films. Go Sean!)

And I really don’t think we can improve on Fulton and Flannery, do you? :) Have a great weekend!

*==Amazon Affiliate Link

Seven Quick Takes--dance and a little simplicity

Linking up with Kelly!

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If you missed it, I did a Yarn Along earlier this week!

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Another thing I’ve been doing is going to dance class. Yes, I have started back, at a great studio, with a fabulous teacher. At the end of class on Wednesday night (in which I did a single pirouette, go me), I felt great. I called my sister afterwards and said, “That was such a great class! I have so much energy! I was pumped!”

“That’s what exercise is supposed to feel like,” Melanie said.

Well, shut me up. I guess I’ve been missing that for 37 years….

So I’ll be going to dance class on Wednesday nights from now on. Woo woo!

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I did have dance as a kid. But the only athletic goal I ever had was to get into pointe shoes, and I figured, since that’s the only athletic thing I’ve ever wanted, maybe I should….try to do that? So I’m trying.

I have a foam roller, a massage ball, and a theraband for working on foot and ankle strength. I am committed,!

And warm up booties! :)

Check out first position in the Bloch booties, y’all. :)

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OK, before I talk about Simplicity, if you haven’t signed up for the email list, please do it? Because then you get all the fun book things first! (well, after my parents.) Go here! No spam! Promise!

(Already a subscriber? I love you! Mwah!)

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OK, so simplicity stuff.

September always makes me think about routine and rhythm and changes I want to make (hence, dance classes). And I thought, you know, I might as well write about these things. Because I think we can all use ideas on how to focus on what really matters, right? To give ourselves margin and to stop the crazy comparison game?

Now, I’m not married and I don’t have kids. I’m just gonna point that out. That makes some things easier for me—as in, I’m only responsible for myself and my own laundry. :) But at the same time, it also makes things harder, because everything is on me. I don’t have a husband to help me out.

That being said, I think that I can still share some things that I’ve found to be worthwhile. So I will share them with you!

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I’m so ready for pro football to start. I’m so glad college football has come back. Sports doldrums are over!

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I’ve been looking for some new movies to watch lately. What have you loved that I need to see? Share in the comments!

Seven Quick Takes--St. Rose and Staycation

Linking up with Kelly!

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Today is the Feast Day of St. Rose of Lima, a Dominican Tertiary! She is an excellent saint for our times.

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You may have noticed some blog silence round these parts—I tend to blog less in the summer. But we’ll be revving back up again, especially as book news comes out. If you want to know all the book goodness first, then sign up for my mailing list! (No spam. Only fun things. Pinky promise.)

III.

“OK, Emily, enough, tell me about staycation!”

OK.

So, we went to Colorado for my sister’s wedding in June, but, as you know if you’ve had a family wedding lately, they’re fun, but they’re work too—you have to make sure your clothing gets to the place unmolested, that your shoes fit, that the priest shows up, etc. etc. etc. And that you didn’t forget anything two thousand miles away. And I’d just finished the first draft of the manuscript. So yeah, I was beat when June was over!

I finally decided that I wanted to take a ‘staycation’ in August. I’d never done it, but it sounded like fun.

I made this a really cheap staycation. I did not have a masseuse come to my house, I didn’t hire a cleaning service to clean my house, and I didn’t get a room in a hotel (all of these are actual staycation suggestions I found on the internet. OK, folks. The hotel one was the only one I didn’t think was really out there. If you want someone to clean your house, fine, and that’s legit, but….as a staycation? I guess….anyway, I digress!)

I set a limited budget, and made a plan. That budget would encompass everything I wanted to do, just like a real vacation, except I was staying in town. Columbus has a lot of fun things! When my family goes on vacation to the beach, we normally eat out for one meal, and have the others at our beach house; I have a nice tea/coffee break in the afternoon; and I do a lot of reading. So all those things were incorporated as well.

IV.

Monday was sort of the planning day. Tuesday was when I ventured forth!

The first place I went was Franklin Park Conservatory and Botanical Gardens. They had several exhibits I wanted to see—a Chihuly installation (above and beyond what the conservatory already has, which is a lot), Blooms and Butterflies (where they release hundreds of butterflies into the Pacific Island Room), and a bonsai exhibit. It would also be a great time to sketch! So I packed up my sketching stuff and headed off to the conservatory.

(To see the gallery photos, swipe or use your arrow keys!)

I’ll have to take photos of my sketchbook pages so I can show you what I did.

It’s always a lot of fun going here. There are different “biomes”—Himalayan Mountains, Rainforest, Desert, and the Pacific Island Water Garden. The Bonsai exhibit was held in a different gallery, where it was very hot, because, glasshouse and it was 90 degrees. But it was still fun. I ate lunch here and grabbed a butterfly shaped silicone tea infuser to replace my tea balls that keep BREAKING!

After I had lunch and finished sketching, I went home, made some tea, read a bit, and then went swimming after dinner.

V.

Wednesday I took a trip to German Village. German Village is, as the name suggests, an area of town that was founded by German Immigrants in the 19th century. Many of the streets are still paved with bricks, and the houses showcase the original architecture. It’s also home to some of the city’s best eating!

I went to Schmidt’s, which was founded in 1886 and serves some pretty epic sausage. The thing about Schmidt’s is they don’t take reservations. So you either get here right when it opens at 11, you eat at off-times, or you just wait. OR, you come alone, like I did, and you eat at the bar, where there is usually no wait! Yay!

After Schmidt’s, I headed to a local coffee shop and then to The Book Loft, which is an incredible independent bookstore built into an old house (or several!). It’s amazing. You could spend hours here, and you get all your steps in wandering around! :) Before cell phones it was interesting to go here with a group—you just sort of had to hope you’d find each other again. I think every book is 5% off, and some are really marked down, like more than half, or even 75%, so you can always find good deals here, and books that other places won’t have. It’s a little bit addictive. I sketched the fountain in their courtyard, and came home with some awesome Wizard of Oz magnets.

(If, somehow, you have missed my addiction to The Wizard of Oz— I have one.)

VI.

Yesterday I had tea with my friend Mary before she goes off to graduate school, and that was delicious, as always. (Cambridge Tea House is the best!)

I also watched To Kill A Mockingbird and started watching Wizard, because it’s turning 80 on Sunday!

VI.

So that was my ‘staycation’. Today is the last day, and I’m having lunch with my dad this afternoon, which we do just about every week and I enjoy. (Last week it was lunch and shopping with mom, which was equally enjoyable!) This afternoon I’ll probably sketch a bit and knit and…do laundry. Which is part of a week-long vacation, anyway. :)

So that’s how I staycationed! Have you ever done this? Any questions about how I did it? Really, once I made a list of all the things I could do in town, it was hard to choose! (I might do one more thing tomorrow before Mass. We’ll see!

Seven Quick Takes--Easing Into August

Linking up with Kelly!

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Hiya, August! Whew!

This summer has been sort of intense, at least June, and then July was sort of decompression, and now it’s August! In some places around here, the kids go back to school in two weeks!

So here’s what going on around Orchard House….

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My city has a farmer’s market every week in the summer and then once a month the rest of the year (it’s indoor then, too). And now I live essentially three minutes away from it, so yesterday I decided to check it out. There’s a vendor that sells meat from his farm! That made me really happy, so I bought a brisket (which I’ve never cooked, but hey, why not), and a pound of ground beef. I also bought tomatoes and candy onions, and I should’ve gotten a LOT more tomatoes so I could make sauce, but…..next week!

Fortunately the market runs weekly through September, so I have two months to stock up on stuff. Looking forward to that.

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I also made a few new recipes this week. I don’t really like to cook in the summer, but somehow in August my brain switches over and says, OK, we can cook now. No idea why. So I’ve made a few good things this week, all Barefoot Contessa recipes: chicken thighs in creamy mustard sauce (I subbed light sour cream for the creme fraiche), Israeli Couscous and Tuna Salad, and Raspberry Crumble Bars.

The topping is granola and some of the shortbread base.

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In book news: I have a copy edited manuscript, and now I have to go over it to see if I want to make any changes (or to catch any glaring errors). So that’s due next week. It’s so weird to re-read what I’ve written…..I hope I don’t think it’s all awful and want to chuck it out. :-p

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We’re in a really busy section of the church year—there are so many feasts and saints’ days in August! And St. Dominic is next week!

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Here’s a look at the state of the To Read Stack:

WHEW!

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Also, if you’re looking for some daily spiritual reading, check out A Year With the Mystics. It’s not out until next month, but through an Amazon glitch, I got my pre-ordered copy early!

It’s so beautiful, and it’s making for wonderful spiritual reading!

A Chatty Seven Quick Takes

Linking up with Kelly!

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This is for my musical theater nerds!

I was thinking this week what the best Rodgers and Hammerstein musical is. (show, not film. In that category it’s definitely The Sound of Music, because it’s a fabulous film and I think it makes the original material better.) My vote is for Carousel, by a smidge (because I do like South Pacific); my dad supports South Pacific, and there was a vote for The King and I.

I think Carousel is the best for a few reasons: a fabulous leading man part; four good female roles (Julie, Carrie, Nettie, and Mrs. Mullins); a glorious score; and good use of chorus. The chorus actually has opportunities to do things often, as opposed to The King and I.

Is it perfect? No. I don’t think we need “Stonecutters” (and I think that was axed from the last Broadway revival), the whole “yes, someone can hit you and it doesn’t hurt at all” thing (eeeeek!), and the ballet can be too long. But, I think that we wouldn’t have had West Side Story, or Fiddler, or really any sort of true musical drama, without Carousel.

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I started working with my Colonial Williamsburg yarn this week. Some of you may remember my extra special Yarn Along about that, and it’s taken me two years to figure out what to do with the yarn! So I’m going to do something simple, but, hopefully, historically accurate. I’m making a scarf, with slipped stitch edges, on size 8 needles. I didn’t want to do it on big needles because they didn’t have big (like, size 12) needles in Colonial times, I don’t think. But this yarn is thick, so I couldn’t do it on a small needle, like a size 5 or below. So I thought a scarf would be a practical, Colonial thing, and I have a lot of yarn, so it’ll be nice and long and warm.

The source of my yarn! Leicester Longwool sheep!

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Reading: I read Where the Crawdads Sing, * and I LOVED IT. I really want to discuss it with someone! Highly recommend it.

I’m currently reading about five million things, but I’m also really liking Greek to Me, * because it appeals to two sides of my personality: A love of ancient Greek myth and culture, and word nerdiness. And book nerdiness!

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A note on the Mueller hearings, but a NON POLITICAL ONE!

One of the things that bothered me about the coverage was that people kept saying that Mueller needed questions repeated, like this was somehow a slam on his intelligence or “with it”-ness.

Guys. No.

I am crazy sensitive about this, because, hello, hearing impaired. I hate asking people to repeat themselves because I know they’re thinking I’m a dim bulb, or not paying attention, or flaky, or something. But really, I want to make sure I understood you!

I don’t know if Robert Mueller is hearing impaired. But I do know that we really, really should stop thinking that if someone asked for something to be repeated, that they’re stupid or cognitively challenged or whatever.

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Nothing new on the book front yet. But please sign up for the mailing list! Then you get all the delicious news first and there might be fun things for subscribers! (Well, there are fun things—two printables I designed—but maybe more than that, who knows!) Sign up!

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July is like sports doldrums. Sigh. Once Wimbledon is over I just languish until sports pick up again in August. I don’t really like the NBA, and I’m a Pirates fan, so that’s sort of like constant baseball futility, but oh well. August and football will be here soon!

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I also joined a book club! Well, I’ve done it before. It’s called Well Read Mom, but this time, I looked into joining a group in my area, and there is one! Yay! I really miss discussing books with folks. I’m obviously not a mom, but any lady can join these! I love this book club because it’s not just current lit. There’s spiritual reading, plays, essays, novels….all sorts of things! It delights my little heart. (And this year Little Women is one of the books, which is so appropriate for my Orchard House dwelling soul!) Have you ever joined a book club or wanted to?

*==I’m an Amazon affiliate, so if you buy a book through these links, I get a tinnnny bit of money, which helps keep the lights on over here! :)

Seven Quick Takes--writing, pro-life ministry, and Washer Monster

Linking up with Kelli!

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Around these parts this week:

Doing the best you can with what you have

Prime Day deals—Prime Day is over, but if you haven’t checked in with Take Up & Read lately, we have a lot of gorgeous studies! Maybe it’s time to start Christmas shopping?

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This is sort of a…well, a sad take. But.

On Twitter this week I saw a woman writing about how she didn’t know how to get a casket for her miscarried child.

The Trappist monks of New Melleray Abbey provide infant and child caskets free to families.

Free. Gratis. No charge.

Go here, and scroll down to “child”, and select a size.

These are beautiful handmade caskets. In addition to the caskets, the monks will plant a memorial tree for your child, and remember your child in a special Mass. The parents also receive a keepsake cross made of th same wood as the casket.

If you need one IMMEDIATELY, call them at:

888-433-6934

They answer the phone 24 hours a day.

They also have a child casket fund, where people can donate to support this ministry, here.

This is such a beautiful service they provide. I know it’s terribly hard to think about, but I have had friends who have lost children to miscarriage. This makes one part of it easier—you don’t have to make your child’s casket or fumble around at a funeral home. The monks will do it, beautifully, for free.

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The book skips along! It’s done with copy edits so my editor has it now and is working on it. No cover art yet but the minute I have it I’ll share with you (subscribers find out first!)

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This week I finished a long linen scarf I knit to use in the summer. I love it. It’s a gorgeous color. So I went to block it in my washing machine. I had run a test piece of linen before and it came out fine so I thought I’d be fine this time.

NOPE.

Washer Monster wanted to eat it.

via GIPHY

But my lovely maintenance man here saved it! Yay!

Yay! It’s saved!

I’m always amazed at how well linen blocks. It’s just great. Such a difference!

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I’m on an Emily Blunt movie binge lately. I watched The Devil Wears Prada and A Quiet Place this week and I’m going to watch Mary Poppins Returns tonight. (My movie BF Colin F. is in it too. I do love his movies.)

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Sometimes we live in Hoth, here in Ohio, and sometimes it’s in the 90s with a heat index giving us a temp of 114. Yeah, it’s that day. So, movie binging and working on house projects today!

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It feels hard to believe that July is half over and that Target has school supply displays up. When do the schools in your area go back? Ours tend to go back in the middle of August now, but they get out before June.

Doing The Best You Can With What You Have

Under the Wave off Kanagawa (Kanagawa oki nami ura), also known as the Great Wave, from the series “Thirty-six Views of Mount Fuji (Fugaku sanjurokkei)”

I was talking to a friend of mine the other day, who, like me, has had some health problems. And we were talking about how the things you do to save your life can later come back and have unplanned consequences.

“I’m dealing with that right now,” I said. We talked a bit more about how frustrating this is—but then we asked, Would we have changed anything?

And the answer is, probably not.

So I thought I’d write about this.

*

After my clinic visits, we always have to wait for blood test results. One of them that we’ve been watching lately is called the A1c, which I talked about in the last post. Basically, it’s a batting average for your blood sugar. And ever since I entered menopause it’s been going up….and up….and up.

This is not good. The more sugar is in your blood, the more that can lead to lots of problems. Problems that I don’t want.

This isn’t CF related diabetes, because my pancreas still works. (I don’t take enzymes to digest my food, so that’s how we know….) But at the same time, my body is clearly becoming insulin resistant.

I’ve been on steroids for 14 years. So the thought is that steroids + menopause=unhappy A1c.

Now, I can’t go off steroids. I’m on a low dose—5 mg a day. There is a 2.5 mg dose. And I might try that. But the problem is, my body has adjusted to them, and my joints, especially like prednisone. A lot. I had CF related arthritis before my transplant and that is helped a lot by the prednisone. I notice when I miss a dose. So when I tried to go off prednisone a few years ago, my body said, “nope.”

Why am I on prednisone? Because I had a transplant.

Which saved my life.

But we know that prednisone has a lot of side effects.

*

Another area where side effects come to play? Cancers. We’ve talked about that a lot here.

And, not pred related, but med related—my hearing loss.

So, these are all things that have happened as a result of staying alive.

But—what were my choices?

Well, to take the meds, or die. Really. It was that stark, in a lot of cases.

So I decided to take the meds. And live with the side effects.

And that can be sort of sucky, to be honest. Because you do things to save your life, but then…there are consequences, and you have to be ready to deal with those. It’s a long-term gamble.

But, and I said this to my friend, we do the best we can with the information we have. We can’t think about 5, 10, 15 years down the road when we’re looking down the barrel of the gun right now.

If you’re in that situation, I know how you feel. I know it’s hard not to google and think about the future. But really, in my opinion, the best thing to do is to talk to your doctors, see what the options are, and then go with what is best—for you, for the situation, for what needs to happen to achieve a good outcome.

Does that mean you’ll be thrilled with what you have to do? Well, no. I’m not thrilled that I’m injecting myself with five units of insulin every night. But it could be worse.

This is what I have to do to stay alive—to see year 15, year 16, year 17….post-transplant.

Now, are there things I won’t do? Yeah. I’ve always said I wouldn’t go for a third transplant. That, to me, is a bridge too far.

But right now, I take the insulin, I adjust my diet, and I do the best I can with what I have.

Day In the Life: Yearly Transplant Testing

I thought that I’d give you a little glimpse into a day at clinic, but in order to get the most bang for your reading buck, I chose do chronicle a day where I do yearly testing—as in, clinic, blood draws, X-rays, CT scan, and a DEXA (bone density) screening. So come along with me on Monday’s trip….

6:30 am: Alarm goes off.

7:20 am: Out the door, to the hospital!

It’s not raining! Yay!

The hospital is only 12 miles away form my place, so that makes it easy to get there, but morning rush hour can be a beast. Fortunately, it’s not bad, and I get to the parking garage at 7:45, after being asked for the nth time if I’m a visitor. No, I am a patient. Deep sigh.

Excellent parking!

The hospital has a nature theme, so there are lots of animals and other nature-ish things around. In case you can’t tell, those big green things are acorns.

7:50: Heading to Crossroads Registration

dooooown the long hallways.

I passed this bunny on the way in:

Registration is in the middle of the hospital complex and sometimes it can be a pain. But there was a nice lady behind the desk, the kiosks worked, I had my wrist band, and was on my way to infusion for my first appointment….

Up we go!

The tower building used to be the main hospital—I’ve spent a lot of time here. :) The fourth floor (4AE) where infusion is is where the adult CF floor used to be. It’s where I almost died and it’s where I waited the night my transplant came.

The 4th floor is also home—or was—to the PICU. So yeah, the fourth floor has lots of great memories. (Seriously, some are good. Most are….not.)

It does, however, have a good vending machine.

Anyway!

8:00 Infusion

In the waiting room—Muppet Babies on TV.

Great view, huh?

Since I was early, I got taken back early—yay!—into one of the rooms. Like I said, these used to be patient rooms. Now they’re smaller. Most of infusion is separated by walls and curtained off areas, but since I’m a transplant patient I go into an actual room.

Sometimes infusions last for hours. Really, the reason I go to infusion isn’t to get meds, it’s to get my port accessed for blood draws. So the room has a bed, and the other areas have recliners, if you’re staying. I’m not. This is an in and out thing.

My great nurse comes in and sets things up….

Fortunately no vitamin levels today, so only three tubes. We could not get that out of my veins. So—port!

The blurry part is the strips that have my ID number on them and get attached to various things when the blood goes to the lab.

And yes, everyone must wear PPE—personal protective equipment—when they access the port. Gowns, gloves, masks, and hair nets. It’s like we’re doing surgery here.

So, we’re running ahead of the game, but then my port decides to be dumb, so we have to wrestle with it for ten minutes, but finally it cooperates and we get the blood. Then we flush the line with saline and heparin, and de-access me. Yay!

I am free to go back down to the main floor!

Hallway out to the waiting room.

Doooown we go.

This used to be part of the old ER—the parking lot to the right is where we dropped me off the night of my transplant.

(Bunnies ahead!)

This used to be “main” radiology, and the little hallway you see above used to run between radiology and the ER. This also used to be the main hospital through way—if you went to the end of this hallway you’d reach the main lobby. But I digress!

I’ve been coming to this part of the hospital for twenty-six years. It’s very familiar.

As is this hallway, but now they’re changing it! I don’t know what to do ! :-p

8:40 AM: Chest X-ray

So I have my probably five millionth chest x-ray (that’s a conservative estimate), before which I ran into my post-transplant buddy Amber, who is also going to clinic. It’s always fun to see friends!

So, out of radiology, heading toward clinic, and passing the fish tank and the satellite gift shop.

(Yes. There are two gift shops)

Sharkbait!

Past the coffee bar….

To the elevators, and up to good old fifth floor CF clinic! :) Also been coming through this door for 35 years. :)

9:00 AM: Clinic

This is where I spent the bulk of my time. On a “yearly” clinic day, everyone comes in: the doctors, the dietician, the social workers—and things get a little more in-depth. (Not so much on the doctor end, since I see him every three months.)

*The dietician asks me to talk about what I normally eat: meals and snacks. She’ll then give suggestions. Right now, we’re dealing with weight loss and the silly A1c levels (more on that in a bit), so we want to make sure I’m eating the right combination of things. She made some suggestions, I asked some questions, and it took about a half hour, probably. I really like the dietician so that helps. :)

*My Doctor. I see one of the two docs on the team every three months. This time, he was happy with how I was doing, and we talked about the A1c thing.

Basically, the A1c is a test that looks at how your blood processes sugar all the time—it’s like a batting average. It’s how much sugar “sticks” to your red blood cells. For normal people, you want it to be under 6% For post transplant people, you want it to be in the low 6%, because the prednisone we’re one messes with how our bodies process sugar. So we aren’t aiming for normal people normal, but abnormal normal. :)

I had been testing my blood glucose levels (BGLs) for a few months, and my doctor didn’t think my numbers were really all that bad. (Again, we’re looking at abnormal normal here. Not normal people. ) He did say that if my A1c was up, then we’d probably have to start me on a low-dose, long-acting form of insulin. It wasn’t really because I hadn’t done what they asked—I lost weight, I’m being more active, and I’m checking my BGLs—but because I’ve been on prednisone for 14 years, and I’m in menopause, which, as we know, messes with hormones like nuts.

But my Chest X-ray looked good, and my PFTs were up a point, so lung wise, things are great. Sinus wise, things are great. I’m seeing all my specialists like I’m supposed to and I keep clinic informed of things there.

My doctor wanted me to do some other PFTs so I had to go back to the lab, but we’ll get there in a second. :)

*Social Work: Normally, they just come in and ask how I’m doing and give me a parking token. Since I’m working with some insurance insanity right now, we had more to talk about and they are going to look into some things for me which is massively helpful. So I was happy!

Finally, Pulmonary Function Tests, aka, PFTs.

Normally, when I say I’m doing PFTs, what I mean is I’m doing spirometry. Aka, the thing where you sit down, put clamps on your nose, and breathe in through a tube connected to a computer. You breathe easily for a few breaths (for me it’s two) and then on the third you take in a huge breath, like you’re about to go underwater, then blow it out fast and hard.

You then get results that look like this:

swirly bit is blocked out personal info. :)

Now, this is in liters, and I generally look at percentages. As of yesterday I had about 54% lung function, which is good for me, and that’s the “moderate restrictive defect” part. It’s not anything to worry about, it just says that at the bottom.

I also did two other kinds of tests which check how gases are diffused in my blood and other breathing related things. Those were also fine. So yay there.

11:00 Finished clinic, back to radiology!

I finished in clinic, said goodbye, and my nurse said she’d email me with follow-up things. I then headed back down the elevators,

past the fish….

And back to radiology.

This was a bone density scan that did scans of everything—we did hip focus and lumbar focus, and then the whole body. This is important because prednisone (don’t we love it?!) also causes issues with bone density and causes osteoporosis. Fortunately my bones are AWESOME. I hope they continue to be awesome—I haven’t gotten these results back yet.

FINALLY, the LAST TEST!

11:45 am: Chest CT

so heading back through the center of the hospital, to the Magic Forest!

And into the CT room:

This is just a regular old CT scan of my lungs to make sure we’re not missing any small things that might be happening that regular X-rays don’t pick up. Easy peasy.

So I was free, and said goodbye to the bunny, at around 12:15!

I was really hungry at this point, because I’d only had a little breakfast—you’re not supposed to eat a lot before clinic visits in case something scary shows up in testing and you have to have a bronchoscopy that day. (Yes, that has happened to me before.)

So I was hungry and had walked about a mile and a half, not kidding, in the halls of the hospital. I hit my move goal for the day at 3 PM, so I knew that I’d get a decent workout on this day, lol.

This used to be a longer day—there used to be more tests. So I’m fortunate that this was a pretty quick day and everything went well, except for the silly port being stupid! :)

Seven Quick Takes--Writing Updates, Birthdays, A Wedding....

Linking up with Kelly!

-I-

If you missed it, my sister got married last week!

It was a beautiful day! I’ll have more about travel logistics up soon, as well as the second part of my April trip…..bad me, I know! I’m being a slacker blogger!

-II-

But I have a reason to be slacker blogger—it’s time for edits! Which means:

via GIPHY

I got edits up to Chapter 11 (there are 15 main chapters, plus the prayer section, and the intro and preface, so 17 chapters and prayers) from my editor yesterday, so now it’s time to DIVE IN. So if it’s quiet around here, that’s why. Amuse yourselves by looking through the archives!

(Or buy Catholic 101! $5!)

-III-

So yes, I’ll be in the office, by Corgi corner, writing. :)

What is Corgi Corner?

This. :)

It’s a Corgi Calendar that my friend Sarah sent me for my birthday, a card with a leaping corgi on the cover, and my Susan Branch Royal Corgi mug, because hello it’s THE BEST.

I fill the mug with tea, and I write. Corgi corner keeps me going!

-IV-

Happy First Day of Summer! It’s been so rainy here that when the sun is out I feel like Gollum:

via GIPHY

It’s only going to be 75 today so not quite warm enough to swim, but warm enough to get outside and squint at the bright thing in the sky!

-v-

We’re hitting the big Birthday Stride in our family: Dad’s birthday was on Wednesday, my new brother in law’s is today, my mom’s is tomorrow, mom and dad’s anniversary (their fortieth!) is on the 30th, and that’s also my grandma’s 89th birthday.

WHEW!

-VI-

The trip to CO was our big trip of the summer so the rest of the summer is delightfully free. Of course I’m working on edits because they’re due before the Fourth of July, but after that, who knows what’s going to happen? Well, other than clinic in July—the big yearly testing date, with CTs and bone density scans—and then my fourteenth transplant anniversary on the 11th!

-VII-

I also need to update you about books I’m reading but we’ll do that later…..I’ll add it to my blog list. In the meantime, tell me what you’re reading! I’m always looking for new titles to pick up!

Seven Quick Takes Of Random

Linking up with Kelly!

-1-

This really is just going to be very random. No catchy titles this week. :)

ICYMI, here’s what’s been on the blog this week:

Yarn Along #90
Last Week’s Seven Quick Takes—You Are Not A Mistake

—2—

I’m getting a Stitch Fix box today! So I will have a post about that next week. I know it’s been awhile since I’ve done one, but one is coming soon! :)

—3—

This week has been sort of odd, one of those weeks that feels long and short, you know? It’s been so rainy here that I haven’t been able to swim much, but my little herb garden is going bonkers, so that’s good. I’m going to have to freeze a lot of basil!

—4—

Sort of going off what I wrote about last week, more thoughts: I like myself.

Now, don’t take that the wrong way. What I mean is, even if I could “remove” the CF from me, I wouldn’t, because then I wouldn’t be me. Does that make sense? I’d be someone else, and I rather like being me.

—5—

I guess that can segue into what’s been popular on Catholic Twitter this week, which is how you dress for church.

My mom never let my sister or I wear jeans to Mass. Or shorts. So I don’t wear shorts to Mass even now (I don’t really wear shorts, period). I have worn jeans, when I’ve been out doing other things and then gone to Mass, and on retreat I certainly wear jeans for all of the Masses except Sunday. But even then, they’re not “jeggings” or otherwise super tight.

The argument this time was about—shoulders.

Basically, ladies and gents, this is how I see it. If you’re going to Mass, dress like you’re meeting the mayor/president/queen/pope. You don’t have to wear a tiara or a poufy dress, but think about how you look and what you’re going to do. Even if you wear jeans, make sure they’re clean and not insanely revealing.

Although, I mean, if you want to wear a tiara, go for it….

via GIPHY

Shorts—need to cover the business, guys. Come on now. Don’t wear something to Mass that is more appropriate for the beach or the boardwalk or Kennywood (amusement park in the ‘Burgh). If shorts aren’t at least covering your butt, then they are failing in their purpose, right?
But shoulders….yeah. OK. You can find sleeveless tank tops (tank tops! Not spaghetti strap camis!) that are fairly modest, like ones from Talbots. With these, you’re not showing an insane amount of skin, but you’re cool. In the summer, I love to wear my Land’s End Fit and Flare dresses (I wore one in my new headshots, which you’ll see next week!), but I put a cami under them, and generally a cardigan over them if I’m going to Mass. (If I’m just going out to dinner, say, I’ll still wear the cami/tank top under them, but not the sweater.)

But look folks. If it’s 90 some degrees, which it can be in my part of the world in the summer, and it’s that hot in church, the cardigan’s not even going to make it through the collect. Please make sure that the churches are appropriately cool so that I don’t faint from heat stroke if I’m wearing a cardigan over my dress.

(And yes—my mother’s home parish didn’t have A/C until I was in high school. So, yes, I know, we all survived without A/C. I don’t know. Maybe we were better adapted as a species, maybe we were just tougher, maybe we were just used to it, I got nothing. But I know that this girl is heat sensitive—thanks, prednisone!—, and so I’d rather not faint in the pew.)

When I dress for Mass, I’m not thinking about being an “occasion of sin” for the men in my parish. I’m thinking about dressing properly to see Jesus and to worship him. And yeah, proper dressing means that, to quote Mother Teresa, God probably doesn’t want to see so much of me. LOL.

Church isn’t the pool, folks.

So that’s all I’m gonna say about that. :-D I mean, really, it’s just common sense. And some fashion trends are just awful and we should all avoid them, right? Like the destroyed jeans look? What’s the deal there, y’all?

—6—

In the “Things the Church Does Well” file: helped invent sign language!

—7—

Like I said above, I should have my “corrected” (read: touched up) headshots next week and I will share them! Yay!!!! It was hard to choose the final winners but I hope you guys like them.

Seven Quick Takes--You Are Not a Mistake

Linking up with Kelly!

-1-

OK, It’s about to get really earnest and passionate in here, folks. Don’t say you haven’t been warned.

With all the new pro-abortion laws coming out, the number of tweets I’ve seen, and articles I’ve read, about how mothers “need” to abort children who are disabled makes me want to scream. There’s nothing quite like the experience of being told that you are not worthy of living to make you really angry.

So we’re just gonna lay it all out here:

If you are a person with a “genetic anomaly”, like me:

You deserve to be here.

You are loved. You are here because God loved you so much that he wanted to create you. And here you are. You are not a burden. You are not a mistake. You are a beloved child of God.

Any one else who says anything else? Deserves to be smacked upside the head. (Verbally, at least.)

—II—

DO NOT give in to these people, my fellow genetic mutations. :) You are WORTH EXISTENCE. If I never write anything else, ever again, please remember that. Please remember that you are loved beyond all measure by God who created you.

-III-

Remember Pope Benedict:

-IV-

OK, is that enough angst for you? And passion?

Because, seriously, folks. Seriously.

-V-

Onto other things! I have submitted my draft! YAY!!!! The first hurdle is cleared in the journey toward Real Bookdom! Yay!!!!!!

-VI-

If you just cannot wait until January to read a book of mine, Catholic 101 is available now and is five bucks!

-VII-

I have scrummy linen yarn sitting in my mailbox that I have to go fetch, so we’ll wrap this up. But remember.

You are not a mistake.

via GIPHY

Seven Quick Takes--the book has a title, the Jane Re-Read, and summer kicks off!

Linking up with Kelly!

-I-

Hi everyone! Happy Memorial Day Weekend (if you’re in the U.S.)! It’s sort of the unofficial kick off to summer, so there will be barbecues and parties all over the place, and I begin the Great Jane Re-Read, where I re-read Jane Austen’s novels every summer. Want to join me? I’m starting with Sense and Sensibility.

-II-

In case you missed it, my book has a title! It’s a great one! I’m really excited! (Can you tell?) As soon as pre-orders open I will share it here. And, again, as a reminder: If you want book news first, before anyone else, sign up for the mailing list.

-III-

In other book-y news….

Better Together is Take Up & Read’s new summer study! I just got my copy yesterday and she’s beautiful!

This book is all about Biblical Hospitality. Sometimes we get scared of hospitality, because we think we need to have the perfect house and the perfect food and the perfect playlist. That’s not what God calls us to do at all. Hospitality is simply sharing and gathering with people. We aren’t meant to do Christianity alone. Let’s get over the idea that hospitality has to be perfect!

This book would make a great summer study—I do hope you’ll join us!

-IV-

The big event of the summer is that my sister is getting married in Estes Park, CO, in June. So we’re all in the midst of preparing for that. I’ve got my packing list written but I haven’t actually started packing yet. And yes, I know I owe you a Denver travelogue, so that is coming, I promise!

-V-

This California bill is a terrible idea, on multiple fronts—if you live in California, email your reps about this?

The confessional has to be a place of absolute confidentiality. It just does. The state can’t mess with this, or it puts priests in a horrible position—they will either go to jail, or be excommunicated. And it put us, the laity, in a terrible position, because how can you be totally open in confession if you know the priest can repeat what you say? (Not that any priest worth his ordination would.)

No bueno, California! Stop it!

(article version of the video above here)

-VI-

Final edits for the book are being done! Well, not final final. Final as in, for the first draft. My editor will be getting me notes and I imagine next week will be a flurry of back and forth sending. :)

-VII-

And while Memorial Day is the kick off of summer in the U.S., let’s remember what it’s really about.

Seven Quick Takes--The First Draft Exists!

Linking up with Kelly!

I.

The FIRST DRAFT EXISTS!

Yay!

When I first got the contract information, the fact that Ave Maria wanted a first draft by June 1 was daunting to some people I talked to. “Can you do it in two months?”

HELL YES I CAN.

via GIPHY

II.

Why was I so confident?

Because I have journalism training. And political training.

And when you have both of those, you learn to write quickly, on ridiculous deadlines.

Deadlines? WHAT DEADLINES.

So, thank you to Professor Kelly Messinger in college for all the Chimes Wednesday nights where we ate Chipotle and wrote into the wee hours! And edited! And wrote! And edited!

III.

Now, that doesn’t mean it’s always easy, because sometimes….

via GIPHY

But then I apply my Maxim: You cannot edit a blank page.

Get anything on the page. Anything. Let it sit there and then come back later and edit it. You never know what can happen.

Chapter 10, for example? WENT OFF THE RAILS. I had no idea where I was going with that one, and we went somewhere I had not anticipated. But there it is!

(It might not stay the way it is. LOL.)

IV.

Speaking of writing—my ebook, Catholic 101, is now $5!

That’s it. Five bucks, y’all.

Go get it!

via GIPHY

V.

I also promise to have the Denver travel posts up next week. This week was just nuts, with getting the first draft done….oh, and getting a new CI processor!!!!!!!

VI.

So, if you want more on the CI, you can visit my series here. Basically I was glad to have hearing, but the processor I had had shortcomings. I couldn’t use the phone.

Now….I might be able to use the phone! I mean, what?!

via GIPHY

I can listen to my voicemails and understand them!

So far, this new processor is a game changer.

VII.

Oh, one more thing about the draft—a question I’ve been getting a lot is, “Well, didn’t you have to write the book before you submitted it?”

Short answer: No. Most places, for non-fiction, want a proposal, with a chapter sample, but not the whole book. I’ll talk more about the parts of the process later (especially in my newsletter!). But, no. I had to write the book to the proposal specs.

Seven Quick Takes--manuscript work, mammogram redux, and sketching!

Linking up with Kelly!

-1-

First off, if you missed it, earlier this week I wrote about how you can’t snap out of depression.
If you think you can do that, please read that post.

If you don’t think you can do that, please read that post.
Mental health is so important, and we, as a society, need to realize that it’s just as real as any other illness.

-2-

I know I promised y’all a Denver/Colorado travel write up. It’s COMING. I swear. I’m in the weeds on the manuscript because I need to have it all written by next Friday for my editor. There are only two more chapters to draft! YAY!!!!!

So once all that goes to my editor extraordinaire, then we edit, edit, edit, and polish, for two weeks, before we send it to the publisher.

-3-

In OTHER book news, I will have a pub date by the end of the month!

via GIPHY

If you are a blog subscriber, you will get the news first. Everyone else will hear AFTER YOU.

So, if you want all book news first, plus the chance to have access to fun book things (yet to be determined, but totally fun), then sign up for the mailing list.

-4-

In the last edition I wrote about my first mammogram. Wellllllll…..

We had to do it again. Because there was something in the picture that the radiologist thought was me moving, although both the tech and I were like, there was no moving.

Anyway. Went back yesterday to take the pictures again, and this time, they are fine, both in quality and in terms of what’s there. So, normal! Yay!

All that to say, again: Ladies. Get your mammograms when you need to. Whether that’s 40, which is the normal recommendation, or earlier (if you have family history of breast cancer), do it.

-5-

Some of you may remember that I dabble in sketchbook keeping. Well, I’m back to that! Yay! I’m really glad because I enjoyed it, and I just haven’t had time to do it. I really kickstarted myself during the trip to Colorado, and now I’ve been working pretty steadily on filling books. Most of my work isn’t amazing, but you know, I’m happy with it. And it’s fun, which is important.

-6-

I’m also working on some long-buried knitting projects, like a linen kerchief I started years ago when I was first learning to knit. Guys: DO NOT START WITH LINEN! Seriously! It’s fine now because I’ve had years of practice, but man, what was I thinking?!?!

-7-

Anddddd also!

If you’re looking for a scripture study for this summer, or maybe a summer bible study for you and your friends, may I suggest Take Up & Read’s new book, Better Together?

This book is about hospitality, and summer is such a great time for that! Have people over! Embrace community! All the good things!

Anyway, more about this book is coming, but you can order it now! It has all the lovely features you expect from our studies: daily readings, Scripture memorization, Selah days on the weekends, and recipes!

You Can't "Snap Out Of" Depression...

“Irises”, Vincent Van Gogh (I saw this at the Getty when I visited in 2016.)

There are few things that make me as angry as willful ignorance.

I can understand people not understanding things about CF, or my hearing loss, or transplant, or whatever. They’re pretty rare things. There’s a learning curve.

What I cannot tolerate, or understand, is how, in the twenty-first century, people still think that you can “snap out” of depression, and that you just need to “be positive”, and that if you have depression, you’re just “giving up.”

And yes, those words in quotes? All things I heard over the weekend during a discussion about this on social media.

So, for anyone who believes that those things are true, some education:

1. Depression isn’t the same as a bad day or a bad mood.

   Everyone has bad days. When I’m having a bad day, I say I’m being “Grumpy Cat.” If it’s a really bad day, then I’m “Grumpy Cat Deluxe.” But both those things are totally different from depression. Depression lasts. Depression doesn’t go away with a good night’s sleep, or watching a good movie, or working out, or going out to dinner with friends. Things that work to get you out of bad moods do not work for depression. They might help. But they won’t solve the issue. That’s because…

2. Depression is a mood disorder that affects your brain chemistry.

   The Mayo Clinic says:

   “It's not known exactly what causes depression. As with many mental disorders, a variety of factors may be involved, such as:

   • Biological differences. People with depression appear to have physical changes in their brains. The significance of these changes is still uncertain, but may eventually help pinpoint causes.

   • Brain chemistry. Neurotransmitters are naturally occurring brain chemicals that likely play a role in depression. Recent research indicates that changes in the function and effect of these neurotransmitters and how they interact with neurocircuits involved in maintaining mood stability may play a significant role in depression and its treatment.

   • Hormones. Changes in the body's balance of hormones may be involved in causing or triggering depression. Hormone changes can result with pregnancy and during the weeks or months after delivery (postpartum) and from thyroid problems, menopause or a number of other conditions.

   • Inherited traits. Depression is more common in people whose blood relatives also have this condition. Researchers are trying to find genes that may be involved in causing depression.”

Did you get all that? Changes in the brain. Hormones. Inherited traits. Brain chemistry. These are not things that just “go away” because you want to “snap out of it.”

And also, they do not go away “if you pray”, and you’re not depressed “because you don’t pray enough.”

via GIPHY

Let’s sum this up really fast. :

Depression is not something that you can snap out of. It’s an illness, just the same as cancer or CF. People with depression need help from doctors, including psychiatrists/psychologists, and this help might include taking medication.

Do not tell people to “snap out of it.” You wouldn’t tell someone with cancer to do that. Don’t do it with someone who has depression.

Depression is not rational.

Feelings are not rational.

If some one tells you not to be depressed because you’re alive, or you have a good job, or a good family, or a nice house, or whatever…..that person does not understand depression. DEPRESSION IS NOT RATIONAL.

If you want a funnier—but entirely true—take on this, visit this post by Allie Brosh.
(Go read it and come back. Really. What follows will make more sense.)

I especially want to note the part about the fish.

Someone asks Ally, what’s wrong? She says, my fish are dead.

OK. Her fish are dead.

The person says to Ally, “Oh! That’s OK! I’ll help you find them!”

That’s not the problem she has. The problem isn’t that they’re gone as in missing. They’re gone as in dead.

No amount of positive thinking will bring the fish back to life.

Same with depression. No amount of being told “how good you have it” or “how happy you should be” will change your feelings! Because it doesn’t work that way!

Please, people.

Stop telling people with depression to snap out of it. Or that they shouldn’t be depressed. This is what leads to people not talking about depression, which makes the problem even bigger, and then it makes people feel like they should be ashamed of it! And they shouldn’t be!

If someone you know is depressed, please listen to them. Don’t tell them to snap out of it.

Seven Quick Takes--Colorado, Mother's Day, and Mammograms

Linking up with Kelly!

-1-

I was in Colorado last week (hence why no blog posting!) for my sister’s bachelorette weekend. I’d never been to Colorado before!

One of the floral butterflies in Downtown Denver

The Collegiate Peaks in Buena Vista

Mel and I at Mt. Princeton Hot Springs.

—II—

I’ll write more about Denver next week, but here’s what I learned, in short, about going to altitude:

Drink a lot of water. Like, insane amounts.
Bring saline nasal spray. My nose was SO dry!
Bring a portable charger, because altitude seems to drain phone batteries faster
SUNSCREEN. ALL THE SUNSCREEN.

—III—

Our trip included Denver (my sister lives in Littleton) and Buena Vista, where the cabin weekend was held. I didn’t realize it was sort of desert-y down there. I should’ve expected it, but some how, I didn’t. I had never been in that sort of environment before, so it was definitely a new experience. I learned that I like green!

—IV—
Anyway, more on CO next week. It’s been awhile since I’ve done some travel posts, so it’ll be fun!

—V—

Amy Welborn wrote a great piece about Mother’s Day and parishes, and I’d encourage you to read it.
Mother’s Day is, to put it nicely, fraught. I really don’t think it should be celebrated as part of the Mass. Mass is for the worship of God, not for the worship of ourselves. If parishes want to do something for mothers (or graduates, or whatever), then they can do it after Mass. Blessings, etc.? After Mass.

I know so many people who are struggling with infertility. I, myself, will never have children. Let’s also think about people who have lost their mothers, or have not-great relationships with their mothers, or have other issues with their moms. Let’s realize this. Sure, mothers are important! (Love you, Mom! :) )

But do we need to make it such a big part of the Mass?

Same thing with Father’s Day. And also, I don’t think we do Father’s day nearly as much as we do mother’s day.

Celebrate your mom, but parishes, please do this after Mass.

And for the love of the Lord, do not make people hug their mothers at Mass! (see the comments in the article for that one.)

(And yes, I love my mother. :) This isn’t about not loving Mom!)

—V—

And because it’s my blog, I’ll expound a little more. One of the comments at the bottom of Amy’s post was all about “celebrating” at Mass. Having visitors stand up, or graduates be recognized, or birthday people be recognized.

I got one word for this:

NOPE.

via GIPHY

People. Mass is not the time for this.

Mass is for THE WORSHIP OF GOD.

If you want to recognize birthdays, do it in a bulletin.

You want to recognize the grads? Have a reception in June after a Mass.

I CRINGE at the thought of making visitors stand up. I hate this. Why do you think a visitor would want to be recognized?! And what does that have to do with Mass? (This visitor never wants to be recognized. Ever. Just let me come to Mass.)

Yes, I realize I’m an old and cranky person here.

But I think it was Benedict XVI who said something like, if we’re applauding during Mass, we’ve completely lost the plot. (I’m paraphrasing, obviously)

Mass is not about us.

If you want to celebrate community things, that’s great. Do it after Mass.

—VI—

Well, that felt good. LOL. .

Writing of the book is going well. My next newsletter for subscribers should be sent out next week, so if you’re not a subscriber, do it now!

I’m 2/3 of the way done with the manuscript. This week has been some hard sledding but you know, the important thing is to get words on a page. So that’s been happening. You can edit words on a page. You can’t edit a blank one.

—VII—

I also had my first mammogram this week. My mom had breast cancer at age 47, so I had to get my baseline done 10 years before her diagnosis—hence, at 37. Since I turned 37 last month, it was time.

I was nervous about it—I’d heard horror stories about it hurting, especially with transplant scars (this might be TMI, but—for my transplant, the incisions are about where a bra underwire is).

But I had a great, careful tech, who made sure that nothing was pinching, and it wasn’t really bad at all. Yeah, the skin is being squished, but that didn’t really hurt.

Ladies—you need to get a mammogram at age 40. You might have to do it earlier, if you’re like me and have family history. Please, please, please check your own screening requirements and set this up.

(And finally, if you missed it, there was a yarn along on Wednesday!)

Seven Quick Takes In a Deluge

Linking up with Kelly!

I.

OK, so, first, I’m thrilled to tell you that the talk I recorded for Kelly’s conference has been accepted! Yay! I’m part of the speaker’s library that attendees will have access to!

What is this conference, you might ask? Kelly has created a conference for Catholic parents of kids with special needs, called “Accepting the Gift.” You can attend in person, OR (and I love this part), you can attend virtually! How cool is that? So if you can’t make it to New Jersey, you can still attend!

Here is the conference page, so check it out! And do attend!

II.

This is also the first talk I’ve done as an adult—I did a witness talk at my parish mission when I was sixteen—but I really do like my talk, all things considered. :) It’s called “Joy Anyway”, and it’s about living life with a chronic illness, because, a lot of the time, we hear from the parents of people like me, but not the actual people who have the illness, and so I’m thrilled that Kelly asked me to contribute my thoughts, because I do care about this quite passionately, as you all know. :)

And of course I love the parents! Parents are awesome! But it’s important to get the perspective from the person with “the thing” as well, in my book. So, thanks Kelly for asking me! (And accepting the talk!)

III.

OK so yeah, it’s deluging here right now. Lots and lots and lots of rain being dumped on Orchard House at the moment. I overslept this morning and this is probably why, because it’s really dark outside. Not that I mind—I generally like rainy days.

IV.

Today is part of the editing process in the writing of the book. My editor has sent me chapters back, and now I go through and play with them and see what I can do to make them better. Some of the changes I just accepted on the first go round because they were easy (like, adapting to the press’s style guide) or just made sense. Bigger changes require more thought and distance, so that’s what I’m doing today.

V.

My birthday was on Tuesday, so I’m thirty-seven now! And it was a gorgeous day, which is rare in central Ohio in early April—it snowed on my birthday (as in the day I was born). But yesterday it was 82 and kids were in the pool, which made me shiver just seeing them in there, because that water was going to be cold!

ANYWAY (digression over!), it was a good birthday with sun and good food.

No, Emily did not eat all this cake. Emily did not come close to eating all this cake. We shared it. :)

VI.

I also think that everyone should like their birthday. Because birthdays mean you survived another trip around the sun! Yay!!!!!! Birthdays are great! I mean, yeah, I’m thirty-seven, but to me, that’s sort of awesome. I wasn’t supposed to hit thirty-three. I wouldn’t have seen twenty-seven without Suzanne, my donor. So, yeah. Birthdays rock.

VII.

It’s hockey playoff time, and Dad and I are going to see the Jackets play the Tampa Bay Lightning on Sunday! This has been a bucket list item for me for awhile—seeing an NHL playoff game. The nice thing is that since the Jackets are playing Tampa, I can unreservedly root for them. When they play the Penguins in the playoffs (as they’ve done before), I can’t do that, I’m torn! But now, I can root for them all the way. It’s going to be great! The Jackets have all sorts of things planned—there’s a big plaza in front of the arena so there will be activities, and the arena opens up earlier than usual so people can head in and start the party. I hope the Jackets win! (They won the first game on Wednesday in Tampa in an amazing comeback. They play tonight. Pens are down one game to none against the Islanders. If you don’t care about hockey, I’m sorry this take was all hockey. :) )

Seven Quick Takes--House Updates, Writing, Hockey

Linking up with Kelly!

I.

So, first, the Penguins are in the playoffs for the thirteenth year in a row. This makes me happy.

(If you’re new here—I’m a huge hockey fan. The Penguins are my “main” team. The Blue Jackets are my “home” team and I want them to make the playoffs too, which they will do if they win one of their next two games.)

II.

Orchard House is in the stage of “personalization” or “zhushing” as they say on Home Town. I’m putting up pictures and other fun things, like my refreshed ribbon board in my bedroom:

III.

If you want to see how tiny Emily was in college, here’s my college ID closeup, along with one of my favorite magazine cutouts:

IV.

And about the button. It says “Italians for President Nixon.” Now, obviously, I wasn’t alive to vote for Nixon. But one of my best friends, Branden, is an auctioneer (as well as about 5 million other things, including our county clerk), and he loves political memorabilia, so he thought I’d like it, since I’m half Italian. And I do like it. It’s funny.

V.
The big pink piece of paper is an audience ticket my friend Amilia gave me. She was lucky enough to attend a general audience with Pope St. John Paul II, and she gave me the ticket. You can tell I’ve had it FOREVER, it’s all sun bleached, but I love it.

VI.

The dog picture? That’s Liberty, who used to be Colonial Williamsburg’s mascot. I was so psyched to meet her when we visited two years ago! She was such a good dog!

VII.

I could keep telling stories, but I’ll wrap up with a writing update! (Maybe next week I’ll tell more stories? What do you think? Because everything on this board has a story!)

So I’ve sent chapters 1-4 to my editor. She has sent me edits for chapters 1-2. So we are really making progress! Yayyyy!

Seven Ways To Bring Joy To Your Day

Linking up with Kelly!

So after my last post, I thought it might be helpful to give you some concrete ways to bring joy to your days when that might REALLY be lacking. So, here we go!

I.

Iris Murdoch said that, “One of the secrets of a happy life is continuous small treats.” So, that’s how we’re looking at this. Small treats!

The first one: Eat your favorite meal. Do the comfort food thing. One meal (and I do mean one) isn’t going to send everything into a tailspin. For me, it’s usually Chuy’s or pasta carbonara. Eat something you enjoy. And enjoy it, while you eat it.

II.

Take a lunch break. When I was working full-time, a lot of my days were…rough. So I would go to Barnes and Noble on my lunch break. Even if I didn’t buy anything, just getting out of the office and into a place that I loved was a great way to reset my day and give me energy to get through the rest of the day.

III.

Go to Eucharistic Adoration. Just sit with Jesus. You don’t have to do anything. Just be there and rest in his presence.

IV.

If you’re not near a chapel, then take some time to pray—a decade of the rosary, reading the Bible, whatever works for you.

V.

Read your favorite book or watch your favorite movie. Say, “tonight is movie night. I’m going to go home and watch my favorite movie and eat popcorn and it’ll be great.”

VI.

Have something to look forward to. Schedule lunch with a friend, make a date to see a movie (even if the date is with yourself, there is nothing wrong with that!), but get something on your calendar that makes you happy, even if it’s something small.

VII.

This doesn’t always work for me, but it might work for some of you—do something physical. That can mean working out, but for me it can also mean playing the piano or singing or even knitting. Do something that moves your body and makes you focus on something else. Sometimes just saying to myself, I can work on that knitting project, or I can do yoga class on Friday, is really helpful.

These are just a few suggestions of things that work for me. I hope they help you!

Seven Quick Takes from the New Place

linking up with Kelly!

I.

Recent posts from these parts:

Meet Orchard House
The contract came!

II.

This video is right on, in all ways:

“That’s compassion!”

“That’s eugenics.”

III.

New desk here. For your Home Town fans: quarter sawn white oak, yo!!!

IV.

There are two more boxes that need unpacked, but everything has been sort of a blur this week so I’m sort of delaying that. A bit. Maybe. :)

V.

I had clinic on Monday and things are pretty good. lung function is stable. My A1c (a measure of sugar in your blood, over time, to put it really basically) is trending upward, though, so that means I’m going back to checking my blood sugar a few times a day, and we’re going to tweak the diet. Yay. My enthusiasm is noted. Essentially, the last three months were stress-tastic so there was stress eating and all sorts of other not-great health decisions, so I have to be much more disciplined in this area.

Well, it is Lent. So being penitential is cool right now. So, into the gym and into a stricter diet I go….

VI.

I re-read the Ramona Quimby books this week, because Ramona is good comfort reading, right? :) She’s also good quick reading.

VII.

I lived in my old place for about 14 years, so one of the things I have to get used to now is new traffic patterns/timing. I don’t know how long it’s going to take me to get places anymore, because new traffic over here! So that’s been a little stressful since I had two doctor’s appointments this week (the above mentioned clinic and my dermatologist). But I know I’ll figure it out…eventually.