Emily M. DeArdo

author

the book

Seven Quick Takes--Live Like Me!

7 Quick Takes, health, the bookEmily DeArdoComment
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OK, so my friend Andrea gave me a great idea for this post: About HOW TO LIVE LIKE ME in this time of virus nuttiness! :) So after some book business I will share!

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BOOK BUSINESS :)

The Living Memento Mori book club has kicked off!

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You can watch the previous two installments on my facebook page! I’d love to see you at our next meeting on Tuesday, when we’ll talk about chapter three.

Also, my book is on sale at Amazon, so you can get it at a reduced price! Yay!

Also, Ave Maria Press is having a sale!

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So you can pick up the book there too!

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OK so, living like me.

One of the things I’ve said in this crazy virus time is that immunosuppressed people like moi actually know how to protect themselves from viruses and things, because we do it all the time.

So now, I shall share my tips with you!

Let’s talk about crowds in general. About people. The first year after my transplant, my team was strict about certain things—no malls in the winter, things like that. I couldn’t go to Mass for the first three or four months post-transplant. Since I’m not almost 15 years out, a lot of those restrictions have eased.

I still don’t really like to fly during flu season and avoid it if possible. But I go to the movies and the mall and all sorts of places. I take precautions. Things like eating from a salad bar, I still don’t do. I try to avoid buffets as much as possible, or, if possible, I try to serve myself first so that I avoid most of the people’s germs getting on the food. These are things I and my family think about. You might not have to think about it, but if you’re worried about the virus, it might behoove you to start thinking about these things and deciding what you are comfortable with—as in, your personal level of risk.

I know people, for example, who, post-transplant, change their clothes if they' are in the hospital for any period of time. I never did that. First off, it would’ve been insanely impractical; I often went from clinic appointments to work. But also, because I was comfortable with that level of “exposure” or “risk.”

So, deciding on your personal risk level is important. And realize that not everyone shares your feelings—and I don’t expect everyone else to live like me! :) But if you want to know my tips, here we go.

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Carry hand sanitizer. Get one of those little key chain things from Bath and Body Works and put hand sanitizer in it. Grab sanitizer whenever you’re in there to stock up on body wash or whatever—it’s almost always on some sort of sale. Then you have a stockpile! I keep one in my desk and also in my purse.

NOW: Here is how you use it.

When you touch things, you use the sanitizer. Touch money? Sanitizer. Use the pen at the credit card kiosk thing at the store? Sanitize. Use the gas pump? Sanitize. Just do it. It becomes a habit. In the hospital rooms at the resort there is a sign that says GEL IN, GEL OUT. That means use the sanitizer gel when you come into a patient’s room, and when you leave it. So think of that. Gel in. Gel out. Clean hands! (You don’t have to use it EVERY TIME YOU TOUCH SOMETHING. You’d go nuts. But use it at various times when you’re in a store. Definitely use it when you leave. Things like that.)

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BRING YOUR OWN WHATEVER

Carry your own pens in your purse, so they’re “clean”, and no one else uses it but you! If you use the pen at the doctor’s office, sanitize your hands after you use it! (Also clean off your cell phone, don’t let other people touch it, and if they do, clean it again. Normally I’m not fanatical about this, but right now, it can’t hurt!)

I have my own Magnificat for a few reasons—because I wanted all the prayers to help me know what the priest is saying at Mass, but now, it’s so I don’t use the communal pew missal! It’s clean! It’s mine! No one else messes with it! Only germs on it are mine. :)

Have tissues in your purse, so that if you have to blow your nose, you can and there you go. :) (Also useful for spitting when you have productive cough—isn’t CF elegant? :-P)

When I fly, I bring wipes, and I wipe down the tray, the seat back, the seat rests, and anything else I’m likely to touch. I am really germaphobic when I fly. Now, who knows, I might be that way at a restaurant.

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Don’t open doors with your hands. Use the handicapped switch plate, if there is one—just bang it with your elbow. Push against doors to open them. Also, if you’re wearing gloves (like regular winter gloves), you’re OK. Basically you want to avoid “high touch surfaces”—if you can’t, then, sanitize and go.

In the bathroom you can try to use a paper towel to open the door after you wash your hands, or just sanitize when you get back to your seat. (B/c not every place has paper towels, but they need to bring them back, since they’re MUCH more effective at removing germs from hands after you wash them than the “air dryer” thing.)

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Demonstrate good germ hygiene. Cough into your elbow. Blow your nose once and toss the tissue. IF YOU ARE SICK STAY HOME PLEASE. This, really, is key. I can do all sorts of things to protect myself, but if you come to church/work/whatever, sick, you are putting people at risk. Please do not be stupid. If you MUST come to work sick, then do whatever you can to avoid infecting others. Don’t sit at he communal lunch table! Cover your cough! Etc.

I am not perfect about all this—ask my mom! :) But I’m still alive 15 years post-transplant so I must be doing something right.

Did I wear masks out and about before? No. Not unless I was on a plane or in a hospital (and even in a hospital under SEVERE duress. I hate wearing them). I do have them—as in, real surgical masks. (I also have cloth ones, thanks to my friend Elizabeth!) I will be wearing them when I go out and I’ll keep a stash in my purse, just like I do with tissues and hand sanitizer.

The whole point of a transplant is to have a life after transplant. I know people who are SERIOUS germaphobes post. They don’t open their windows when someone is cutting grass outside. They don’t open car windows if there’s construction. They’re terrified of leaving their house.

That was never me. The point is to live, but not live stupidly. I try not to do stupid things.

Like I said above, I’m not perfect. But a lot of people are freaking out about being in public with anyone, with touching anything, and I’m going to tell you that there are ways to do it and be safe. There really are. I know because I do it, every day, year in and year out, that don’t involve shutting everything down and never leaving your hobbit hole again. I went to the pool. I went to hockey games. I went to amusement parks.

In short, I had a life.

You can too!






Book Sale at Amazon!

the bookEmily DeArdoComment

Hi everyone!

Just wanted to let you know that my book is currently discounted on Amazon. I have no idea how long this will last, but if you’ve been wanting to get a copy (or a few more!), this is a great time to do it!

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Also, be sure to join the book club! We kicked off last week on my Facebook page, and you can catch that recording, and join us for the next installment tomorrow! We kick off at 3:00 EST (so noon for you West Coasters). This week we’ll be talking about Chapter Two—Jesus Receives the Cross. (Or picks up his cross, or carries his cross—this station has a lot of names!)

I’d love to see you there!

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Seven Quick Takes--Easter Friday

7 Quick Takes, hearing loss, health, holidays, journal, the bookEmily DeArdo1 Comment
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HE IS RISEN! Wooooo!

Let’s try to party as much as we can? OK?

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Little bit of business first—Ave Maria Press is shipping books again, and my book is on sale!

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The book’s sale price is $9, so grab a couple, stock up! Or buy some other great books—Joyful Momentum , Pray Fully, and Giving Thanks and Letting Go, are other great reads!

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On the blog this week:

Wednesday Notebook #5

Emily Knits a Cardigan!



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Whew, I feel like I have a lot of things to tell you, but I don’t know if I really do! :)

My birthday was last Thursday—Holy Thursday. Obviously we didn’t “go” to Mass. I watched Bishop Barron’s Mass from Santa Barbara—his Masses are captioned, so that’s why I watch those in particular.

There was cake….

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There was mucho birthday yarn….

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There were other gifts, too, but I didn’t take photos so I’ll have to talk about them next week. :) Maybe I’ll do a whole birthday post so we can have some fun?

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And Easter was weird, too…..I mean, no Mass, for starters. I did watch a Vigil recording at my home parish. BUT—IT IS STILL EASTER. So even though it’s not what we’re used to, the Resurrection still happened. :) We are still Easter people!

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(LONG!)

A couple things that I’ve been thinking about—If we’re all going to be wearing masks for the near future, I, and other hearing impaired folks, are massively screwed, because we read lips. (Well, some of us do!)

Can I just ask—if someone asks you to pull your mask down when you’re talking to them, can you step back and do that? Because otherwise, I really have no idea what you’re saying. In hospital settings my doctors and nurses don’t wear masks, because we end up having a “What did you say?” marathon. It’s just not practical. I’ve seen some pieces that have talked about face time calls or having someone with you to “translate.”

Massive sigh.

Guys. First off, if I had to bring one of my parents to every doctor’s appointment I had, they’d go nuts. And they can’t go to every one. Second, this denies me my agency. I hate to say that because it’s sounds so jargon-ish, but people need to talk to me, not the other people with me. ME. THE PERSON, THE PATIENT.

There are, apparently, masks with clear sections around the lips for lipreading in development. They have to be FDA approved, for starters. And then put into production. And honestly, I don’t think they’re going to be produced for a while yet, because they’re just not a priority.

It is already hard enough for me to get hospitals to email me or talk to people who aren’t me because I can’t use the phone. But if mask wearing becomes super en vogue, a lot of us are really screwed, and I’m going to be either having meltdowns in stores, or I’ll be answering all the wrong questions and looking like an idiot.

I’m trying not to freak out about something that might not happen. But I would ask you all to be aware—if you’re talking to someone and it seems like they’ve really lost the plot, and you’re wearing a mask, chances are they’re hearing impaired.

Oh, and also—and this is just in general—if I ask you to repeat yourself, please do it. Don’t huff about it or be annoyed about it. Just repeat yourself. You don’t need to start with “I said.” And also DO NOT SAY YOU SAID NOTHING. You clearly said something.


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On that note….happy Friday? :) I’ve been watching a lot of the Met Opera live streams. If you’re an opera fan, be sure to check it out. If not, check it out! Tonight is Madama Butterfly, super popular, and a great first opera! Also, this is a gorgeous production.

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Seven Quick Takes Jumble Bag

7 Quick Takes, food, journal, Lent, the bookEmily DeArdo5 Comments

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Around these parts this week…

Yarn Along

My interview for the Ave Explores Lent Podcast is live!


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I’ve started Bullet Journaling again—I’ve missed how it keeps all my lists and various things together, so I’m back to doing that. It’s fun! At least I think it is. I’m a big believer in having my life in one place. I still use my Emily Ley Simplified Planner, but my bullet journal is a place to keep my lists, medical information, travel plans, all sorts of things like that in one place as opposed to scattered throughout the house on pieces of paper.

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Trying to get back in the workout groove—I’ve worked out three days this week so far and hoping I can do it today. I’m just so darn tired. Maybe it’s the weather? It’s really gray here. Hopefully I’ll perk up in a little bit and manage to do something!

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Next Saturday I’m going to see the touring production of My Fair Lady and I am really excited about that. I haven’t been to a show in forever. Really. And I’ve never seen My Fair Lady on stage. So I’m excited about that!

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Favorite thing I’ve cooked this week: Outlander KItchen’s Scotch Broth. Give it a try, it’s really good! (If you can’t find pot or pearl barley, you can use quinoa or couscous instead!) And it’s so not hard. It cooks for a while—so it takes awhile—but it’s mostly hands-off cooking.

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A photo I took last week of Venus and the moon:

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How’s your Lent going? Did we all make it through the first week OK? :)

Seven Quick Takes--Friday after Ash Wednesday

7 Quick Takes, Dominicans, Lent, the bookEmily DeArdo1 Comment

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So first, around the blog this week:

My Interview with Danielle Bean is live, and the book is a Lenten Pick!

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My interview with Kyle Heimann is now live: listen to it here!

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This week’s Memento Mori art: El Greco, St. Francis Venerating the Crucifix

This week’s Memento Mori art: El Greco, St. Francis Venerating the Crucifix

(Yes, I’m going to try to have Memento Mori art during Lent!)

Speaking of Lent, how’s it going for you? We’re two days in….are you feeling OK? Keeping up with penances and prayers? Remember, no meat today! Go to your parish fish fry!

My Lent has been going pretty well so far. I’m doing a lot of study—a lot of Lenten reading. One of the things I’m trying to do is order my day around the monastic timetable of the nuns in Summit, NJ (I had discerned entering with them back in the day—fun fact!). No, I am not (yet) getting up at 5:00. No, I probably will never voluntarily get up at 5:00! But I do stick to the times of work and study that are here, and that gives me set times to get things done, as it were-household chores, and my Lenten reading and such.

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Currently I’m reading Union with God, Exalted, Consecration to St. Joseph, and 33 Days to Greater Glory. Oh, and using the Memento Mori devotional and journal in the evening right before bed. Whew! It’s a lot. But Union with God and Exalted are for study—I read a chapter a day and take notes—while the Consecration and 33 Days are devotional. That helps break it down.

I’m also saying my breviary—lauds and vespers, of course, and on days when I’m home and can do it, the Office of Readings and None around 3:00.

It probably sounds like a lot, but remember I’m not married and my job is….well, writing. :) And to write, you gotta read and study! It’s very Dominican, my Lent plan.

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Obviously if you’re still looking for Lent reading, um, my book is good for that! ALSO, Take Up and Read’s Hosanna study, of the Gospel of Matthew, is GREAT, go get that too! (It is also, at the time I’m writing this, on sale!)

Also, if you’ve read my book, can you take a second to leave a review on Amazon? The more reviews, the more publicity it gets on Amazon, which means more sales! Yay!

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We actually had a snow day yesterday. As in, it was cold and there was snow. Amazing. It’s been such a milk winter (I AM NOT COMPLAINING!) that I actually wanted a snow day, and I got it. I did a lot of work on my November Blanket (which is a ginormous monster right now but really close to being done!), because when it’s cold you want a big fat knitting project that will keep you warm while you work on it!


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Can you believe it’s March on Sunday? Where did February go? January always seems so long and then February is just gone, and it’s even a leap year! But I’m excited for March, because I’m going to get to see the touring production of My Fair Lady!

"Girlfriends" Podcast Is Live, and "Living Memento Mori" Is a Lenten Reading Pick!

the bookEmily DeArdoComment
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Some book news for you!

First, my interview with Danielle Bean is live! You can catch our conversation about my book and life and other things here. It was great to be on her show—I’ve loved Danielle’s writing for a long time, and she’s a fellow Steelers fan.

Second, Kathryn Lopez (who blurbed my book, see above) recommended my book in her National Review post on Lenten Reading. If you’re an NRO-ite and have been for awhile, you will understand why I’m excited to be in The Corner!

If you haven’t picked up your copy of Living Memento Mori yet, you can do so here.

How’s everyone’s Lent going so far?

Seven Quick Takes, the PRE LENT edition!

7 Quick Takes, Lent, the bookEmily DeArdo3 Comments

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OK so Ash Wednesday—and Lent—are NEXT WEEK.

Let’s get ready to Leeeeeeeeeeeeeent!

First off I assume you have my book in hand, yes? :) Because it’s perfect for Lent! (If not, go get it at any of these fine retailers! [scroll down to the bottom] Or ask your local Catholic bookshop to get it for you!)

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Penitent Mary Magdalene, El Greco (notice memento mori!)

Penitent Mary Magdalene, El Greco (notice memento mori!)

OK, so, that’s one thing you can do for Lent and I would greatly appreciate it. :)

But let’s talk other things.

Before we start, here is the USCCB’s Lent homepage, with resources and documents and all sorts of things.

There are the three “pillars” of Lent: Fasting, Almsgiving, and Prayer. Let’s talk fasting first.

Fasting normally means food. It means one full meal and two “snacky meals” that do not equal a full meal. Obviously no snacking in between meals. This applies to Catholics 18-59, and Ash Wednesday and Good Friday are the only required days of fast.

If you are like me, and fasting from food is not permitted for medical reasons, then you can fast from other things. I will “fast” from social media on these days—facebook, IG, Twitter, etc.

In this category you can also include what you’re giving up for Lent. For me, it’s book buying, and yes, that is hard. This year I’m expanding that to cover things that aren’t necessary. (The one exception to this is the NYC trip in April. It’s during Holy Week, it’s Birthday Week, and I’m going to buy scrummy yarn at Purl Soho. I JUST AM.)

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Let’s talk almsgiving. Obviously tithing to your parish needs to happen. St. John Paul II said that when we tithe, it should feel like a sacrifice. So maybe take a look at your charitable giving and see if you can up it—maybe not permanently, but for Lent? Can you drop some money in the church poor box (if you have one), or give to the charitable works collection?

Let’s also remember to support charities that do work both domestically and internationally. Mary’s Meals is a great example and one of my favorite charities. For $21, they can provide food for one child at a place of education for a year. A year! For the cost of three months of Disney Plus! Or, in my case, a hardback book. That’s amazing.

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And finally, prayer.

This can include, of course, The Stations of the Cross. You can perhaps get to Mass a bit earlier to spend time in prayer before the tabernacle. You could add a holy hour (holy 15 minutes, if you’ve never done a holy hour before?). You could add a daily rosary with your family. There are so many things you can do here.

Some good Lenten reading in this stack!

Some good Lenten reading in this stack!

Here’s my general plan: I’m going to add another hour of the Liturgy of the Hours, either Office of Readings or Compline or one of the midday little hours. My spiritual reading is going way up: I’m reading The Dark Night of the Soul and also Union With God According to St. John of the Cross. (So I’m doing a little Carmelite spirituality this Lent!)

I’m also using Sonja Corbitt’s Exalted: How the Power of the Magnificat Can Transform Us as a guide to lectio/study. Not sure which it will be yet. Maybe both! I’ll also be reading Fr. Gaitley’s 33 Days to Greater Glory, because I adore John’s Gospel—it’s my favorite—so this book is perfect for me.

Generally, I want to re-direct my reading and make it more spiritually-based and I need to study a bit more. Lent is a great time for that.

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In order to have more time for this, I’m cutting back on social media, not entirely like on Ash Wednesday and Good Friday, but…partially. I’ll be implementing the Advent rule of a “social media cutoff time” in the evening. For Advent, it was 9:45. For Lent, it’s 9:15—unless there is hockey on, and then I’ll stay on Twitter to the end of the game so I can follow. No hockey, no extra tweet time. I’ll also be on social media in “chunks” during the day—like a fifteen minute block here or there, to do things and check notifications or whatever—but not sort of continually. I’m still thinking about how that will go. Since I have book promotion to do and book events to talk about, I do have to be on SM to share all of that with you, and I want to share it, so that’ll be part of what happens when I am on. It’s more about being intentional with the use, I think.

So that brings me to….

What are you doing for Lent?

Tell me in the comments! :)

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I have a diabetes education class today which’ll be interesting, because my type of diabetes is interesting. I take insulin, but I’m not a true Type I. My body doesn’t use insulin correctly, but I’m not a true Type 2. Sigh. It’s a mess and a half. And it’s not even true CF Related Diabetes (CFRD), because my pancreas does make insulin and my body does use it to a certain extent! Aye caramba!

I’m hoping that the educator will be able to answer some of my burning questions, though!

We’re tweaking the insulin a bit—I’ve added some intermediate acting at night which has had a nice effect on my morning BGLs. So that’s good!

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Post from the last week:

Signing at the CCWC!

Also, if you want a signed copy of the book, email me! They’re $20 and that includes shipping. If you have a copy and would like a bookplate (which I sign), email me as well!

Signing at the CCWC

the bookEmily DeArdoComment
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Saturday was a big day—my first ever book signing!

I was sort of nervous—what if no one wanted it, what if I just sat there like an idiot?—but that evaporated pretty quickly. The signing began during the breakfast break, so right after Mass ended I was at the Ave Maria Press table with fellow Ave Author Elizabeth Tomlin. We joked that the conference could have been sponsored by Ave Maria Press, since almost all of the speakers (4/5!) were Ave authors, and thus there were book signings all day! The Ave table was huge.

Even before Mass, I was prowling around the table, checking on my babies, which the AMP ladies had so nicely displayed….

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(No, the book is not $12—that’s the conference price. :) It’s $13.95.)

I really loved the Ave ladies—they were so fun and so encouraging!

Fellow Ave Author Elizabeth Tomlin and I with our books! And yes, that’s Sister Miriam James’ books next to ours—she spoke at the conference and is a fellow Ave Author.

Fellow Ave Author Elizabeth Tomlin and I with our books! And yes, that’s Sister Miriam James’ books next to ours—she spoke at the conference and is a fellow Ave Author.

I have no idea how many books I signed, but I loved meeting people and talking about my book. Since this is my “home” conference I saw a lot of people I knew , which made it even better.

And I got to see the materials the fabulous Ave art department had made for me: now I have book marks and prayer cards!



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You can sort of see them in this picture—this was taken from my vantage point behind the AMP table. I’ll take better photos and share them later because they are great. I also have bookplates! So if you bought a copy of the book and want my signature in it, I can send you a signed book plate! Just email me and we’ll get that done. You can also contact me for signed books!

I managed to do my conference shopping before the day really began—an advantage to getting up at 5:15 and getting to the center at 6:15!—and I’ll share with you the great shops I found in another post. But here’s one of the things I just loved:

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My Dominican loving heart was overjoyed by this great sticker!

I also managed to steal away to have some time in the adoration chapel (vital!) and listen to some of the day’s great speakers. It was a long but great day!


Seven Quick Takes--Authenticity, Book Signings, Etc.

7 Quick Takes, health, the bookEmily DeArdo4 Comments

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From the blog this week:

“Quote Me” podcast and book signing on Saturday!

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So, authenticity.

In one of my interviews for Living Memento Mori, I was asked if it was hard to be so open about my health in the book.

“No.” I said. I didn’t even have to think about this. To me, it wasn’t hard, it was necessary. For me to be real, to really reach the reader, I had to be authentic. And that meant showing what really goes on.

I don’t show everything in the book. The book is limited in scope, to an extent, and so not everything is there, and not everything ever will be. There are things that are private.

But for the most part, I wanted to share how I really feel. I do yell at God. I get mad. I get angry. I throw things. Sometimes I act like a five year old. Like last night.

There were a lot of nit-picky things going on. I had whiffed an interview question. It’s Valentine’s Day and I’m single. And I really really really didn’t want to be a pincushion last night. I didn’t want to test my blood sugar before I went to bed. I didn’t want to shoot insulin into myself with crappy pen needles. I just did not want to.

I grouched a bit. I cried some. And then I did it. And I shared how I felt on Twitter.

Why?

Not for pity or sympathy of whatever. But because I want to be authentic with people. I want to be real. And while I do, generally, handle things with some degree of aplomb, sometimes I am just done. Sometimes, in the words of the musical Side Show, “I want to be like everyone else.”

I’m not.

So every so often, I have a breakdown, but then I just do it again. I feel a lot better today.

But I always want to be honest with my readers. I don’t want you to think I just sail along on a boat of Saint-like acceptance and Oh, everything is wonderful all the time!

It’s not. And that’s just fine. It’s OK to get angry. The key is to do it and then pick up again.

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OK, so, whew, got that done. :)

BOOK SIGNING TOMORROW! Catholic Women’s Conference here in town! YES, you can get tickets at the door!

I am signing during the breakfast break after Mass at the Ave Maria Press table, which is usually right by the eating area. Come say hi! I would love to meet you and sign your book!

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Next week I think two things happen—my Girlfriends interview with Danielle Bean goes live, and I think an interview for Aleteia (Catholic news/lifestyle website) goes up. I will link to them here and on SM and on the media page when they do!

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If you would like a signed book, email me and we’ll do it! They’re $20 and that includes shipping!

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OUTLANDER is back!

I love Outlander. It’s my favorite. I flew threw the series when I was having all my heart thythm issues in 2010—so much so that the clerk at the local B&N told my dad, “Does she know that this is the last one?” when I got to the (then) last installment.

The TV series airs on Starz and season 5 starts on Sunday—but if you have the Starz app, like I do, you can watch the season premiere now! Yay!

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Normal reminders to buy the book, sign up for the newsletter, etc. And please leave a review on Amazon if you’ve read the book! Thank you thank you!

Book Updates: My Podcast with Lindsay Schlegel Is Up and Book Signing This Weekend!

the bookEmily DeArdoComment
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So, some updates!

Above, you can see the quote that I discussed on Lindsay Schlegel’s Quote Me podcast! I loved talking to Lindsay (she’s a fellow Ave Author!) and we had such a good time talking about my book, St. Thomas More, and all sorts of other things! Take a listen!

Also, a reminder that I will be signing my book at the Columbus Catholic Women’s Conference on SATURDAY! You can still get tickets or you can get them at the door! I am signing during the breakfast break (and I’ll stay at the table as long as people want me to sign, lol.)

And FINALLY, my book is 25% off on Ave Maria Press’s site through THURSDAY!

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Enter MEMENTO at check out to save 25%!



Seven Quick Takes--My baby is two weeks old, upcoming events, knitting, and common sense

7 Quick Takes, health, knitting, links, the bookEmily DeArdoComment
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It’s Seven Quick Takes time, YAYYYY!

Posts from this week:

Know Your Body, Meds Have Side Effects, and Being Your Own Health Care Advocate

Yarn Along


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The first post is important, I think. Yes, it’s long. But people need to know that you have to be your own medical advocate—you can’t depend on other people all the time, sadly!—and, yes, medicines have side effects that you may or may not get. I think a lot of people freak out at the idea that meds can cause bad things to happen to you, and yes, that is true. I lost my hearing because of meds. But, um, also, alive. It’s a trade off.

Anyway, it’s a long post but I think it’s worth reading as just a general part of adulting. Know your body!

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My book is two weeks old! Yayyyyy!

I’ve been doing a lot of interviews, getting lots of good reviews, and I’m really happy about all of that. If you want to get a copy, go here for all the options.

Also, if you buy it at Ave Maria Press, you can get 25% off! Yay! Enter MEMENTO at check out!

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I still haven’t checked out bookstores to see if my book is there, so hopefully I’ll see it “in the wild” soon. :) If you do, take a picture and tag me on Instagram!

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It’s actually going to snow tonight. We’ve had a pretty mild winter so the idea of snow is like, oh, cold? Snow? Winter? What is this madness? Oh well.

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I’m going to be at the Columbus Catholic Women’s Conference next weekend signing my book! Come join me!

If you want to read articles or listen to podcasts and interviews, I’m linking them on the “media” page under Living Memento Mori at the top of the site. So you won’t miss anything. If the story or interview can be linked, I will link it, and I’ll also post on social media (and here, of course) about interviews as they air!

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If you’ve read the book, you know about Rita, one of the best nurses at The Resort and a great friend. She and I are going out to dinner tonight to celebrate the publication, so yay!!!!

Have a good weekend!

Book Doings!

the bookEmily DeArdoComment

OK, I promise I won’t become That Person who only writes about her literary triumphs, but, it’s my first book, so you know, I might be a little over the top. Sorry. :)

OK so first of all, Ave Maria Press is having a sale!

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If you go to Ave Maria Press’s page for my book, add it to your cart, and enter MEMENTO at check out— you’ll get 25% off the cover price! Yay! So go get it! The offer is good through 2/13/20.


Second, my book is in the Columbus Library System!

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The Columbus Library system is one of the largest libraries (by circulation) in the country—as well as being a top-ranked library—and I am thrilled that they ordered six copies! Six! I would’ve been happy if they got one, but six!

So as you can see, they are on order, meaning: Not in the stacks yet (but you can see where it will be, once they’re in!). If you’re in the Columbus area, be on the look out! (If you’re not, you can probably get it through inter library loan? I think?)

Obviously I’m very excited about all this. :) I’ve been doing interviews, too, which are added to the media page as they are published or go live, in the case of podcasts. Reviews for the book are there too.

And if you’re coming to the Columbus Catholic Women’s Conference, I’ll be doing a signing there during the breakfast break! (at the Ave Maria Press table, which is usually right by the eating area.) I’d love to see you!

I think that’s it for this edition of Book Doings. :) Have a good weekend!

Publication Day

the bookEmily DeArdoComment

It’s here.

Publication Day.

Books that were pre-ordered should be arriving in mailboxes all over the place, and now you can walk into a store and request my book.

Wow. That’s a really weird, and yet amazing, feeling.

I mean, my book is on the Target website! (and part of a 3 for 2 deal….)

Pub day flowers from Farmgirl Flowers

Pub day flowers from Farmgirl Flowers

I spent five years shopping the proposal for what became my book. I was sad, frustrated, I never thought anyone would want my story—was my story no good? Was it just bad?

I am so thankful that Ave Maria Press accepted it and they have been a fabulous team to work with!

I am so thankful for all of you readers—without you this would not have happened! (really. It’s true!)

I hope that you love the book. I hope it helps you in your own life.

Today, I am just really, really, really thankful.



It's Publication Week! Instagram LIVE Tomorrow!

the bookEmily DeArdoComment

It’s PUBLICATION WEEK!!!!!!

I can’t believe it—Friday is the big day!

(If you haven’t pre-ordered yet….do it! )

I wanted to let you know about a few things that are happening:

First, tomorrow at 2:00 PM EST, I’m doing an Instagram Live!

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My account is @emily_deardo, so come on over! I will be going through the book, showing you all the features and talking a little bit about the genesis of the book and some behind-the-scenes things of an “easter egg” nature.

If you can’t come at 2, a live is available on IG for 24 hours, and I’ll try to cross-post it here and also on Facebook.

Second, I have a Media page now on the blog

This page is where I’ll post reviews, media pieces, interviews, and things of that nature, so if you miss something, it’s all there for you to read!

Third, I’m recording a podcast episode!

I’ll be talking with the lovely Lindsay Schlegel on her podcast, “Quote Me” . The episode date is TBD, but I will let you know when it happens!

So that’s what’s on the docket for this week….I’m so excited!

SQT--A reaaaaaallly interesting week!

7 Quick Takes, health, hearing loss, the bookEmily DeArdo3 Comments
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Linking up with Kelly!

And it’s gonna be fast quick takes today!

  1. OK, so my body does weird things before big events. Jeopardy taping? Pneumonia. I guess for the book release month, my blood sugars will go nuts! But it’s OK, we’ve got them under control now.

  2. But to get them under control, Dad and I spent 25 hours at OSU, in the ER/observation, so that was….fun. Best not discussed.

  3. So I’m taking two types of insulin right now—a rapid acting one before I eat, and an “intermediate” acting one. These have both made my body much happier! There is sleep! There is energy! My cells rejoice in insulin!

  4. But……sigh. OK, doctors’ offices. You must have a system for the hearing impaired to contact you. MyChart doesn’t always work. You must have ways of contact that a patient can do independently! I couldn’t directly contact my doctor’s office last Friday and that led to a really crappy weekend! Today, I can’t select my doctor on MyChart, so I had to contact my FABULOUS transplant coordinator, who will send them numbers that I emailed her! Guys, you can’t think that your lovely “secure system” is going to be the best way for people to get care if they’re hearing impaired! I RAGE ABOUT THIS.

  5. STATE OF THE BOOK WICKET is here!

  6. Maybe this is the time to show everyone the handy chart about emergency room vs urgent care usage…..

  7. OK, that’s it for this week, go read the link at point 5! YAY BOOK! Two weeks to PUB DAY!!!!!!

The State of the Wicket

the bookEmily DeArdo1 Comment
My babies on IG! :) You can follow me there @emily_deardo.

My babies on IG! :) You can follow me there @emily_deardo.

Oh, my babies are in the house!!!!!

Really, it’s so weird. It almost doesn’t feel real. I just like to look at them.

They are coming off the presses. There are two weeks until the publication date! Aghhhh!

This post is titled “The State of the Wicket” after a Diana Gabaldon blog post of the same name, where she updated her readers on what was going on with books. So I’m doing the same thing today.

Here’s what’s going on:

  • My first event has been scheduled! I’ll be doing a book signing at the Columbus Catholic Women’s Conference. As more events are added, they’ll be on the event page here on the site.

  • I’m also lining up some interviews. When those are released, they’ll be noted here on the blog, on social media, and I’ll link them on the book page. I’m probably going to create a separate media page for interview links and such. Some interviews have been done already, and I can’t wait for them to come out!

Here are some ways you can help promote the book….

  • Add it to your Goodreads to-read list if you’re on Goodreads!

  • Ask your library to order a copy.

  • Ask your local Catholic bookstore and “regular” bookstore to stock it!

  • Once you get your copy, share a picture of it on social media, tagged #livingmementomori

  • Leave a review on Amazon once you get it and read it!

Preorder links are all here, so you can choose your bookstore of choice!

I know, I’m talking about pre-ordering all the time here, but it really is important. It helps the press know how many copies to print, and it helps build up buzz for the book, which is tres important in getting the word out so as many people as possible can get a copy!

If you want to read something I’ve already written while you’re waiting for your book, Catholic 101, my ebook, is available!

If you are subscribed to the newsletter, you get everything first. Links to interviews, first opportunities to buy signed books (once I figure out logistics), any fun things, etc.

I would love to come speak to your group!! just drop me an email and we’ll connect!

On the Ninth Day of Christmas, MY BOOK ARRIVED

7 Quick Takes, the bookEmily DeArdo4 Comments
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There she is, guys.

She really exists.

It’s so hard to explain what goes into a book. Years of work, in my case. I started writing my story when I was in college. Sending out queries and proposals and getting nothing back, or form rejection letters. Freaking out over sample chapters.

And now it’s here.

It’s been written. It’s been published. It’s beautiful.

It’s just like when Jo March opened her package at the end of Little Women and whispers, “My book!”

It’s really real.

So yeah, today was pretty exciting….

And then I took the book to Chuy’s for lunch with my best friend Tiffany.

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And showed her to Jesus….


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Over the next month—the official pub date is January 24—I will be talking about the book in IG videos and Facebook lives, as well as sharing endorsements and telling you what is exactly in the book, because it’s not just my story. There are tools for you to use!

If you haven’t pre-ordered, please do so, because if I want to write another book (and I do), then this one has to sell like hot cakes. :)

I was going to write about Christmas for quick takes this week, but this just takes the cake over everything else.

I’m just so excited!!!



Seven Quick Takes--The Medical Saga Endeth (we think)

7 Quick Takes, CF, health, hearing loss, the bookEmily DeArdo1 Comment
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Linking up with Kelly!


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So, here’s a spicy take I wrote this week about Medicare!


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And here’s the follow up:

So, we got the great folks at the CFF involved (they have a team that just looks at insurance stuff). They came to the same conclusion we did: that there really is no plan that covers everything, but that hospitals and doctors and I will make it work. (think Cinderella’s sisters: “I’ll make it fit!”) NCH doesn’t normally have a lot of Medicare people (because, it’s a, um, Children’s hospital), but….”they’ll take it”, says the finance office. (Thank you finance office!)

What I kept hearing from everyone was “well, we haven’t had to deal with this before.” Yes, I am the one that is trail blazing for everyone else. Future generations, YOU ARE WELCOME! I expect copious floral arrangements on my grave and Masses offered after I die. :-p

So, my hospitals are (sort of) covered. My main doctors—as in, the Big Three—are covered. The next issue?

The Prograf (or, THE GRAF).


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The prograf is the med that basically keeps me alive. It keeps my lungs from realizing that they aren’t actually, um, the factory setting. :-D

Now, when I was emailing my nurse about this, she said, “Well, we can always try generic.”

“What do you mean?” quoth I. “Generic doesn’t work for me!”

“Well, the formulation is a lot better now, and the hospital is even considering switching its formulary to the generic,” nurse said.

AH! Well, that would solve problems!

Or….would it????

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So I go to the insurance site. I plug in generic prograf, expecting to see massive cost savings and ease of access!

Hahahaha.

NO.

Generic Prograf is covered—but as a tier 4 med, meaning it’s like, non-preferred, no one wants to use it, and then I see, oh, step therapy may be applied.

Step therapy, for you new people, is when you have to try other drugs first before the company will pay for the med you want.

Yeah, we’re not doing that with the drug that keeps me alive.

So, what we’re going to do is go through prior authoritzation stuff, and we won’t have to pay out the nose, because I qualify for the Medicare Extra Help program (which is a great thing, so kudos there), so we can’t pay more than a certain very low amount.

So.

I have picked a plan. The saga is over. (For this year!)


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In other news, my tree is up, and Susan the Corgi is ready to celebrate….

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And I think I’m doing buying gifts. That’s exciting. :)

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I had my first book interview on Wednesday with the delightful Fr. Patrick, O.P. We talked for forty-five minutes about all sorts of good stuff! The interview probably won’t be up until January, but when it is, I’ll let you know! I’ll be posting all media related to the book on the book’s page. . (And pre-order links, to a variety of retaliers, are there are well! Amazon US, Canada, and UK; Barnes and Noble; Indiebound….)

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Just a note about what Kelly wrote about today—how we tell the stories of the disabled.

One of the things I’ve noticed, especially as the practice euthanasia almost on demand rises, is that people don’t really understand life with a disability, or an illness. They think they do. They imagine the horrors of it.

But honestly, that isn’t the way it works.

When I lost my hearing, it was very gradual, over a period of years. It was gradual. Now, if I’d lost it all at once, yes, that would’ve been traumatic, and highly so.

Did I grieve losing my hearing? Um, yes. A lot.

But when it came to CF stuff, it was gradual. I still enjoyed my life, and I do enjoy my life, even with insanely stressful weeks like this week.

Being disabled makes things harder, but it doesn’t make my life worthless or less.



Seven Quick Takes--My Book's First Picture, Gallbladder test, and more!

7 Quick Takes, writing, the book, Take Up and ReadEmily DeArdo4 Comments
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linking up with Kelly!

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Look at my beautiful baby’s first picture! Thank you Ave Maria Design Department!

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Isn’t she pretty?!

So yeah, I love this a lot. They also made me new graphics for Facebook and Twitter so if you follow me there, you’ll see those lovelies!

THANK YOU to everyone who has pre-ordered! If you want to, go here. (It makes a good Christmas present!!!! It’ll just come later, which extends Christmas joy!)




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So on Monday I had a HIDA scan at OSU East hospital. The test wasn’t terrible. Well, at the time. But it did require an IV—to stay in for a few hours.

Well, that was a lovely piece of information….

It’s also a two part test, which I didn’t know.

So, the first part is: Put in IV (poor guy who had to do it…I was laying on the gurney [which was supremely comfortable! Really!] thinking, if we don’t get access, we can’t do this test….) We got access. It wasn’t very comfortable. I have bruises all over my arms right now, so my veins need a break for like, two weeks, minimum.

Anyway!

So we got the IV in. The contrast was pushed in. Then I went out to waiting room for an hour while the contrast worked. OK .

Came back into the room, took the pictures, took about four minutes. Great.

Then we went to part two: AKA, nap time. (I had woken up at 6 AM for this test. I was ready for a nap.)

This part is the “stress test”. They take was is basically the fat content of an Ensure drink and drip it very very slowly —as in it takes an hour—through the IV. This stresses the gallbladder. Then pictures are taken to see how it is moving through.

So I took a nap, then woke up an hour later when the IV beeped. A nurse came, rolled me back to the scan room, took the photos, took out the IV, and I was free.

I was insanely thirsty because I couldn’t drink anything, so I got some Sprite Zeros from the cafeteria, and Dad and I went to lunch. (He had to drive me, per their rules.)

Fortunately I had some phenergan left over from my previous hospital adventures….

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because over the next few days, my stomach was not happy with the stuff that had been forced into me. So I felt nauseated, tired, and just weird for two days. Sigh. But I feel better now, so I hope that I don’t need to darken a medical doorway for the next few months!




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With the newfound energy, I have written out all my Christmas cards and begun mailing Christmas gifts. I want to mail them early. I also live right down the street from the post office so it makes mailing things and getting more stamps insanely convenient.




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I take Christmas so seriously that I have a gift and card spreadsheet.

Yup. I’m weird.




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If you missed it: my post on how girls need a plan!

And: The Real Lucy Pevensie (whose feast day was last week!)

It’s also St. Cecilia’s Day, so here’s some music! And the poem by Dryden!

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Still looking for an Advent journal? You can get Take Up & Read’s!!!! And it’s on sale RIGHT NOW! (as of this writing, Thursday night. I hope it still is when this goes live!)

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